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I've had CML for 20 years and want to encourage others

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (102)
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@ericloomis

They’re not saying much about the pain. They prescribed me Gabapentin to take 3 times a day to keep the pain to minimal. I also have oxycodone and morphine. I would like to get off the oxycodone at some point in the near future and am not sure if it is normal to have to take medications like this for pain management for this type of cancer or do most people just have to take the TKI and that’s it?

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Lori, Volunteer Mentor | @loribmt | Oct 25, 2022

I hope some of our members I mentioned will be able to offer you some answers. CML is out of my area of experience. I had AML (acute myeloid leukemia) and it developed so quickly that I was in chemotherapy and transplant before it had a chance to cause bone pain.

You’re on so many meds for pain, that has to be discouraging. You must feel pretty sluggish during the day. Do you work outside the home?

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