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Looking for what to expect as I consider Kidney Transplant

Transplants | Last Active: Apr 17, 2023 | Replies (201)

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@rosemarya

@kandyh, Good Morning, Kandy, and Welcome to Connect. I am a liver and kidney recipient, and a mentor. I assure you that any discussion, regardless of the date stamp, contains meaningful patient experiences. You can activate (bring to the forefront) any discussion simply by making a comment as you have done. As member on Connect you are welcome to join in any discussion anytime.
Kandy, I would like to help you get started by asking you - What brings you to Connect?

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Replies to "@kandyh, Good Morning, Kandy, and Welcome to Connect. I am a liver and kidney recipient, and..."

I am here for my 33 yr old son. He is a childhood cancer survivor and had a bone marrow transplant when he was 13. He has done exceptionally well follow that transplant. However radiation and antiviral meds caused the start of his kidney damage. Over the years they worsen but were “hanging in there” until he was given remdiziver last November and lost kidney function and has been on dialysis since. Intially we had 3 possible donors but all 3 have been eliminated for health reasons. We are in Houston and have quite a few transplant centers in our area. But non offer non- steroid protocols for post kidney transplant. My son has a lot of difficulty with even low doses(5%) of prednisone. We are hopeful Mayo can help him.