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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: 14 hours ago | Replies (66)
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@queensmom

Hi ,
I am also diagnosed with neuroendocrine carcinoid cancer which also involve two lymph nodes . How was your treatment? What to expect? Thanks

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Replies to "Hi , I am also diagnosed with neuroendocrine carcinoid cancer which also involve two lymph nodes..."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 25, 2022

Hello @queensmom and welcome to Mayo Connect. I'm sorry to hear that you are dealing with neuroendocrine carcinoid cancer (NET). You asked about my treatment, as there was no lymph node involvement and no current evidence of metastasis, I only had surgery but no other treatment.

As NETs is a rare disorder, I highly recommend that you see a NET specialist for treatment. You can find a list of specialists if you go to the Carcinoid Cancer Foundation website. Here is the website for that organization:
--Carcinoid Cancer Foundation
https://www.carcinoid.org/for-patients/
How are you feeling since your surgery? What has your doctor suggested as a follow up?

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