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@hello1234

Hi @caretakermom
Yes, I thought targeting the Myfortic might be their next move. My Mycophenolate was reduced in half when I was diagnosed with CMV, and then it was reduced in half again when I was recently diagnosed with BK. I never returned to a full dose. At this point, I am not fully removed from Mycophenolate. I am still on 250mg twice a day along with my Tacronlimis. They did warn me that if it this current reduced dose doesn't resolve the BK, they may remove the Mycophenole completely and add the 5mg Prednisone. So I am aware that it's a future possibility.
I am happy to hear that they are aggressively following up on the latest labs. I feel badly that hubby is going through this latest WBC challenge. I know how upsetting this can be! I just got my lab work back and my WBC is low and out of range. I am wondering if my positive covid infection or the covid monoclonal antibodies infusion may be causing it this time.....It's always something!
Hang in there @caretakermom and please keep me posted. ❤

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Replies to "Hi @caretakermom Yes, I thought targeting the Myfortic might be their next move. My Mycophenolate was..."

@hello1234, did the covid monoclonal antibodies work? I hope you're feeling better from covid.
You have a double whammy, covid and BK!! I'm sorry to hear about your WBC out of range. My hubby says he feels tired and I wonder if that has to do with his very low WBC!! Is your BK treatment improving? My friend says that when her BK resolved they did put her back on Mycophenolate full dose. Her WBC did drop during BK but it wasn't dangerously low fortuanately.
I'm not sure how hubby's leukopenia resolves if Myfortic is the culprit, unless they remove Myfortic completely and permanently!! I am hoping the provider gives the OK to order Neupogen shots, wait for WBC to improve then put him back on Myfortic. Will know before end of week.