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@hello1234

Hi @caretakermom 😊
The reason I asked about all your hubby's current meds, is the Valcyte was not the main culprit of my low WBC during CMV. My Mycophenolate (Cellcept) was the med causing me to run to my local cancer center weekly for Neupogen shots. It wasn't until ID recommended to reduce my Cellcept in half during active CMV, that my neutropenia and leukopenia began to resolve in a couple of weeks. I was happy to hear that your husband's experience with Neupogen shots was more successful than mine. I went for weekly shots (Monday, Tuesday, Wednesday) and it didn't help until Cellcept was reduced. It looks like your hubby is still on reduced Myfortic so that's good news. Did your nurse coordinator get back with you? Are they saying to stay the course and give the WBC a couple more weeks to resolve? Is hubby set up for Neupogen shots this week? I am surprised to hear that his WBC went down after stopping the Valcyte, but it may just take a little more time.

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Replies to "Hi @caretakermom 😊 The reason I asked about all your hubby's current meds, is the Valcyte..."

@hello1234, yes our nurse coordinator got back to us this afternoon. The provider recommends that the Myfortic be stopped altogether immediately, and resume 5mg prednisone, until they can find out what his latest lab chemistry is. The most recent lab result was collected from 10/17 and only 2 days prior to discontinuing Valcyte. Early this morning hubby went and got labs done for this week so the nurse is trying to see if Quest will stet the 10/25 CBC lab because it will reflect more accurately what his WBC is. My hubby is not happy about resuming 5mg prednisone daily, this really will cause his blood sugar to fluctuate like crazy. Hubby is T2 diabetic. Nurse did say that when all is resolved he may discontinue prednisone and resume Myfortic.