Uncertainty

Posted by nazleer @nazleer, Oct 22, 2022

How do you carry on with unknown digestive issues from day to day?

Interested in more discussions like this? Go to the Digestive Health Support Group.

It's truly a struggle. But if you wake up in the morning and have no symptoms, it's a darned fine day.

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@nazleer, sorry for your troubles. My GI issues are known (gastroparesis) but like @viv1953, I struggle. And if I do have some symptoms but they're fewer or less severe, it's a good day. Some days I just want to give up and stay in bed but I take a diuretic and have to get up anyway, not joking. If I stopped all meds and just stayed in bed it might take too long to die and I'd be even more miserable. I know it sounds dark but some days that's all that keeps me from giving up. Lately most days have been better so I keep on truckin'.

It helps to get everything checked out and get a diagnosis so the problem(s) can be treated and/or managed.

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@nazleer

It is very difficult. .. and still is with knowing some of the causes.

To help: keep a journal .. what foods you ate .. your symptoms or non-symptoms from them. Do the same with any medications you take. Take note of how your body reacts to stress .. physical and mental.

Try eliminating some usual culprits of foods …. like dairy, gluten, sweets, greasy foods .. and do it one at a time. That way you know what you can eat and not eat. With me .. sometimes I may have a problem with a food and the next time not. Our bodies are just weird at times.

Read the literature that came with any prescription drug you take or look it up online if you no longer have those papers. … look up the side effects of non-prescription drugs you take too. Ask your doctor or ask your pharmacist about a different drug you can take if a drug seems to be the problem. Pharmacist can be a good friend in figuring out drugs … you could even be taking them the wrong way with your other medications.

Our digestive systems can change as we age. What we used to be able to eat we may not tolerate because of a disease or we all of a sudden become sensitive or even allergic to something we have eaten or a drug.

Best of luck in dealing with your issues.

ZeeGee

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It’s difficult, I haven’t done any traveling in over seven years. I hate appointments. Having to be somewhere at a certain time creates more stress and worry.Not every day is bad, but not knowing when a bad day will come kind of makes you a prisoner in your home. Diet makes no difference in my case. I eat the same small group of foods every day.

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@fourof5zs

@nazleer

It is very difficult. .. and still is with knowing some of the causes.

To help: keep a journal .. what foods you ate .. your symptoms or non-symptoms from them. Do the same with any medications you take. Take note of how your body reacts to stress .. physical and mental.

Try eliminating some usual culprits of foods …. like dairy, gluten, sweets, greasy foods .. and do it one at a time. That way you know what you can eat and not eat. With me .. sometimes I may have a problem with a food and the next time not. Our bodies are just weird at times.

Read the literature that came with any prescription drug you take or look it up online if you no longer have those papers. … look up the side effects of non-prescription drugs you take too. Ask your doctor or ask your pharmacist about a different drug you can take if a drug seems to be the problem. Pharmacist can be a good friend in figuring out drugs … you could even be taking them the wrong way with your other medications.

Our digestive systems can change as we age. What we used to be able to eat we may not tolerate because of a disease or we all of a sudden become sensitive or even allergic to something we have eaten or a drug.

Best of luck in dealing with your issues.

ZeeGee

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Thank you for your reply. It is harder to deal with digestive issues not knowing the cause of the problem. I did eliminate red meat, yogurt, regular milk, spices, raw broccoli, spinach, and other greens, hot peppers from my diet. I noticed that my diarrhea is in check.

I just want to be certain about what I should avoid and what I should be taking.
I don't have the known symptoms of microscopic collitis and I'm on Ozempic for my diabetes. To try and substitute Ozempic with some other drug is my last effort to deal with the digestive issues.

Nazlee

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My GI issues are undiagnosed. I have had every test possilble and they all show fine. I am in my 10th month of being in bed because my pain is so unbearable.

Who do I see if the 2 GI's I have seen can't figure it out?

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@nazleer

Thank you for your reply. It is harder to deal with digestive issues not knowing the cause of the problem. I did eliminate red meat, yogurt, regular milk, spices, raw broccoli, spinach, and other greens, hot peppers from my diet. I noticed that my diarrhea is in check.

I just want to be certain about what I should avoid and what I should be taking.
I don't have the known symptoms of microscopic collitis and I'm on Ozempic for my diabetes. To try and substitute Ozempic with some other drug is my last effort to deal with the digestive issues.

Nazlee

Jump to this post

@nazleer

Everyone is different on what works for them. So it is important to know what helps and hurts your condition. My husband is diabetic and it seems every drug for diabetes can cause stomach problems (mostly diarrhea) .. and yet for some reason it goes to constipation. He does better during the times I can get him to take a probiotic or eat yogurt. Probiotic supplements or probiotic foods .. such as yogurt or kefir .. is the only other suggestion I have for you. The supplement helps me a lot and watching my diet.

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@ilean

My GI issues are undiagnosed. I have had every test possilble and they all show fine. I am in my 10th month of being in bed because my pain is so unbearable.

Who do I see if the 2 GI's I have seen can't figure it out?

Jump to this post

@ilean
What symptoms do you have .. diarrhea, constipation, cramping, bloating? Where is the pain and what kind of pain .. sharp .. cramping .. dull .. with movement .. after you eat .. when your stomach is empty?

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@ilean

My GI issues are undiagnosed. I have had every test possilble and they all show fine. I am in my 10th month of being in bed because my pain is so unbearable.

Who do I see if the 2 GI's I have seen can't figure it out?

Jump to this post

@ilean What kind of pain are you having? Can you describe where and when you have pain? Does bed rest make it better? Can you eat?
Maybe we can help figure it out- many of us here have GI pain- some with a diagnosis and some without.

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@nazleer - Have you had any testing done? What bothers you most? How does it affect your life?

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