← Return to PMR: Are there treatment alternatives to Prednisone?

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@johnbishop

Hi Marie @marieameehan, I would like to add my welcome to Connect along with @amandajro and others. I can understand your concern and if I were in the same situation I would be looking for alternatives. I upped my intake of more foods with calcium and added a calcium supplement but have not tried AlgaeCal. There is another discussion on the supplement that you might want to read through.

-- Osteopenia, Osteoporosis: Anyone used AlgaeCal, strontium citrate?
https://connect.mayoclinic.org/discussion/question-5/

@tsc may have some thoughts on alternatives to Methylprednisone and how to improve bone health. Have you had a chance to discuss your concerns with your doctor?

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Replies to "Hi Marie @marieameehan, I would like to add my welcome to Connect along with @amandajro and..."

Hi @marieameehan, I started taking prednisone mid-May of 2021 for PMR and GCA, 40 mg. I went into remission and stopped taking it a few weeks ago. My osteoporosis started before that but was diagnosed after I started the prednisone. I decided to take alendronate. Like John, I eat more calcium, plant based diet, etc. I take supplements that are supposed to help bone health - boron, Vitamin D, Magnesium, Vitamin K. Collagen is also supposed to help. I'm on the fence about strontium so haven't taken it. @windyshores has researched it, @bunky44 may have started a supplement with it, and I'm not sure what @callallo is doing. Maybe they can fill you in. Can you exercise at all? You can Google Dr. Loren Fishman's " Twelve Poses vs Osteoporosis" - it's 12 yoga poses that have improved bone density. There are 3 versions - one for osteoporosis, one for osteopenia, and one with the regular poses. I started doing them as soon as I found out about them because I would like to get off the alendronate. By the way, Algaecal has posted videos of the three versions of the poses separately, also on YouTube. Sara Meeks has also done extensive work on exercises for osteoporosis as has Margaret Martin, MelioGuide (you can google them). Unfortunately, I don't know of any other treatment for PMR and GCA other than corticosteroids, which because of their side effects, most doctors want their patients to taper down as quickly as possible. I hope this helps and I wish you all the best.

My last bone density test was normal, but as I am on prednisone I am concerned about bone health. Another factors I deal with is high blood density. So, my rheumatologist advised to lower dairy intake. What about my bones?? I had a parathyroid hormone test and it was normal. So, what do I do about bone health?? Anyone else had this dilemma?