← Return to CLL leukemia: Just diagnosed, what can be done?
DiscussionCLL leukemia: Just diagnosed, what can be done?
Blood Cancers & Disorders | Last Active: Jul 20 8:54am | Replies (200)Comment receiving replies
Replies to "@loribmt ,non matched maybe because they're her half brothers, no more relatives to turn to right..."
Hi @majid12, aw, I’m sorry your wife’s brothers aren’t a match for her. But it’s pretty common not to have familial donors available. For that reason, there is an international bone marrow registry that should be involved in finding her a matching donor.
I don’t know what country you’re from but talk to the transplant team/oncology team to see what donor matching system they use. For me in the US, my team at Mayo Clinic used Be The Match Foundation. I was fortunate to have a donor found for me within a 3 month time span from the USA. However had one not been found nearby, Be The Match would have done an international search. Here’s the link to that origination.
https://bethematch.org/
I’m sure that your wife’s clinic must have access to a donor program where you are. It’s standard practice for any bone marrow transplant program to help find a donor. That’s their job. Often a patient will have repeat rounds of chemo to hold them in remission until a stem cell match has been located.
Personally, I received 3 rounds of chemo to hold me until I was able to have the transplant. Every 28 days I had a 7 day chemo regimen which kept me in remission while a donor was found. A friend of mine waited safely for 7 months with repeated chemo until a donor matched him. I would expect this is possible for your sweet wife too, so please stay hopeful that a donor will be located.
I’m thinking she’s completed 2 rounds of chemotherapy so far since September. How is she tolerating the chemo? I’m sure she’s tired but she should bounce back between the weeks of therapy. Has she been able to return home now?