← Return to Chronic painful Bone Marrow edema (BME) bilateral feet

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@loribmt

That sweet little girl. It always breaks my heart to hear stories like this. Kids shouldn’t ever have face this type of problem. I’m with you, if she’s only had the scan on one leg from the knee down, as a mom, I’d be pushing to have both legs scanned. Does she have pain anywhere else besides her legs?
She’s had this for so many years and no answer. What have the doctors been saying about the edema. It’s good that she hasn’t developed tumors in her bones but the edema is certainly cause for concern.
What was the reason only her right leg was examined in the latest MRI?
December feels like such a long way off when your daughter is in pain. The appointment with an orthopedic doctor will be to check her legs?
Is she seeing a specialist for the mass on her thyroid? Have tests been run to see what is going on there?

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Replies to "That sweet little girl. It always breaks my heart to hear stories like this. Kids shouldn’t..."

I haven't gotten any answers yet for the edema. I'm hoping the orthopedic doc will have some in December. She's seeing a specialist for her thyroid and should be getting biopsies soon. Right now I'm on the hunt for other cases of such things in order to be able to find relief for her before December. She has some growths on the surface of her foot and the dermatologists wanted to be sure there weren't any AVMs (arteriovenous malformations) before they try and remove that on the surface. We're being followed by a ton of specialist-just nobody who can help us with her bones yet.