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At home covid test positive: What should I do next?
Transplants | Last Active: Nov 3, 2022 | Replies (50)Comment receiving replies
@chickytina 😊
I didn't realize that you are a new transplant (May 2022). Congrats!!! I forget, did you receive a liver or a kidney? And how have things been going so far for you?
You may want to discuss Evusheld at your next transplant doc appointment. I am pretty sure that it doesn't matter what level immune suppression you are taking. Actually, the newer the transplant and the higher the immune suppression level, the more I think they will encourage you to get some covid protection. (The vaccine probably won't work with high levels of immune suppression). When you can, double check with your doctor or portal your nurse to get their thoughts on Evusheld for you. With a working husband and son out in the world, it may be helpful to you to have a little protection. ❤
Replies to "@chickytina 😊 I didn't realize that you are a new transplant (May 2022). Congrats!!! I forget,..."
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Actually I am a bilateral lung transplant. It has been going very well. I had possible begins of rejection back in July (picked up on my bronchoscopy), which was handled with mega doses of antirejection medication.
I had an issue with my pulse being too erratic after the transplant. It would go from 90 to 140 to 70 to 200 within seconds and I would be just lying down. Prior to the surgery, I had a fast heart rate due to having issues with trying to keep my oxygen level above 80. They put me on medication for AFib and this has evened out my heart rate.
The main other complication that I have had is that my pressure has/ been too low. I always had a bit low blood pressure (would go down to (74/46), but with the meds it was going lower causing me to be dizzy up to 10 times a day and passed out once. Since I have been on medication to raise my blood pressure, I am having less dizzy spells.
However, I am waiting for the patch to come in the mail to record my heart rate for 2 weeks. I will then mail that in and after a couple of weeks they will give me the results. I don't feel different most of the time when my heart rate is fluctuating or when my blood pressure falls, so they are trying to see what exactly is causing the dizziness.
I had asked the doctor the last time about the new vaccine, but he said because I had 4 prior to transplant that I don't need it now. I am very careful with everything since COVID is what was the last straw for my lungs. I will discuss with the team when I go for my monthly appointment tomorrow. Thanks for the idea.