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Perineural or Tarlov cysts

Spine Health | Last Active: Apr 18 5:37am | Replies (96)

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@msmess

Hi I am MSMESS... I have several 4 or more perineural cysts on L1-5 and one of them inside my tailbone. I have done PT on and off for 20+ years. I also have degenertion of spine. I have also had numerous cortisone injctions mostly at L1 and L3. Just before COVID I had a caudal block and that was the best improvement of symptoms for 3 months or so. Surgery has been discussed by 2 neuros I saw, but to be told it would not make me worse but could not give me an estimate of how much improvment I may see, I decided against it. The ortho that did my caudal told a n intern that was shadowing him that the spinal fluid within cyst could make things worse if ruptured, but neuro said the cysts were not a concrn and NEVER cause symptoms. I have read that and read they are now finding some become symptomatic. Not sure what to think about surgery for degerated discs along with these cysts.

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Replies to "Hi I am MSMESS... I have several 4 or more perineural cysts on L1-5 and one..."

Hello @msmess and welcome to Mayo Clinic Connect. Do you think that since the cysts are not symptomatic and you had a good outcome with the caudal block, that it could maybe work again for you prior to considering surgery based on what you've shared?

I would also like to bring in members @bustrbrwn22 @nleejewell and @taml who have shared in this discussion previously to see if they may have some experiences to share.

I am curious what the ortho's recommendation was for block vs. surgery?