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@cathleenc

53 F, non smoker. Previous pneumothorax in left lung 2015. I have three ground glass nodules in my right lower lobe. Two of them I have been watching for about 5 years. I get scans every two years of lungs and kidneys, as I have Birt Hogg Dube. My scan in Sept after 16 mos. showed two of them had grown. 7mm to 9 mm and 9 mm to 11 mm but the bigger one now has a solid component of 4 mm. Worrisome for adenocarcinoma. At UC Davis cancer center, I am having an ion robotic bronchoscopy Oct 24th with an interventional pulmonologist. I really liked him, he spent over an hour with me discussing my case. Let’s biopsy this now, do not wait. I also have another ion ct scan this Friday. My PFT was good. I finally had the consult/second opinion at UCSF with a video visit. He flat out told me - I have cancer (the best kind!?) as it is slow growing and no need to biopsy because we already know, plus the chance of false negatives. Only worried about doing something if it grows to 8 mm. Plus, he showed my scans to a thoracic surgeon who reported the solid component is a bit deep and worrisome for lung volume loss if they did a wedge. He said possibly do some radiation and/or watch it for 6 mos. but first he is presenting it to the tumor board UCSF for more insight. With all that, I think I should go through with the bronchoscopy for the potential of securing biomarkers. I look at this I am blessed to have caught it so early so let’s handle it. Thank you for your comments.

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Replies to "53 F, non smoker. Previous pneumothorax in left lung 2015. I have three ground glass nodules..."

Hello @cathleenc. Thank you for coming back and sharing an update. In order to allow for members to more easily track your journey, I have moved your last post into an existing discussion where you first shared, which you can find here:
- Does anyone have Birt-Hogg-Dubé syndrome (BHD), genetic lung disease?
https://connect.mayoclinic.org/discussion/bhd/

Will you still proceed with the other ion ct scan this Friday?