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What helped you make treatment decisions following DCIS lumpectomy?

Breast Cancer | Last Active: Mar 18 8:02am | Replies (119)
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@jeanadair123

I also had grade one, decided on lumpectomy and radiation but I had radiation in the prone position which effects your other organs less, I only learned of this through a nurse I was talking to who said her mother had radiation in the prone position, she hadn’t heard of it either, it makes me wonder why no one knows of this no one I have spoken to in my cancer group were aware of this. I tried anastrozole and a couple of others but I felt like I was 100 years old I could barely get out of a chair the side effects were awful. I went with the quality of life. It is up to each individual to do what they feel is right for them.

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Replies to "I also had grade one, decided on lumpectomy and radiation but I had radiation in the..."
elliej | @elliej | Oct 20, 2022

I’ll ask about the prone position. Tnx

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glendafl | @glendafl | Nov 18, 2023

Hi, I learned about the prone position radiation through research. No one told me, either. I expressed my concerns with radiation to all my doctors. I am concerned/worried about the involvement of my heart and lungs. I went to two different Oncology Radiation Drs. I had to call each Hospital (3) here and ask the radiologist directly if they offer the prone position radiation and if not what do they recommend for left breast women?? Finally, a radiologist technician told me. I don’t know why they seem to make it so hard to find things out. I have a question about the marking/ mapping. They did not mark my breast itself. The marks are on my side and back. I didn’t realize it until I got home. I have called the Radiologist to find out if this is correct, but no one has called me back to explain this. It seems like it takes forever to get questions answered by your team. It just shouldn’t take so much effort to get in touch with someone. The nurse navigator does return calls, but long after you’ve already suffered and found out via other means.
Glenda.

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