Undiagnosed Hip Pain

Good Morning and welcome to Mayo Connect. I see that you are responding to @angie8088 who posted here some time ago about her hip pain. I don't know if she still follows Connect, but maybe someone else here has the same experience and can help you.

Can you tell us a little more about the pain you have, how long, and what other issues you are having? Are you currently under the care of a doctor for this issue?
Sue

Hello everyone,
As far as with my foot/toe metatarsal pressured bone marrow edema, the podiatrist has no idea what happened for my foot to have this occur, since I have no underlying pathology or etiology for it. However, I got food poisoning and became severely dehydrated from that & lost 10 lbs within a short period of time from the constant diarrhea. I was put on a potassium bad and IV since my potassium was critically low at a 2.3. Then, the next day the potassium level went up to 3.6 so they discharged me. A week later I went to the chiropractor and they pulled on my leg because I told him that I was wanting to jog and had runners knee. He said the pulling on the foot could help. Anyhow, a week later I went jogging & had to stop mid jog at about 2 miles. My foot didn’t hurt but it had a tired feeling to it. That evening my feet were both swollen. The swelling went down on my right foot, but remained on my left foot. I woke up the next day in pain and again had to go the Emergency Room because the pain was unbearable and I couldn’t walk on my feet, especially the left foot. It turns out I had bursitis in different parts of my foot (nonspecific), pressured bone marrow edema at the fifth metatarsal, & tissue edema of the foot. They saw the tissue edema as cellulitis- which is pretty much gone now at the third month mark- however, the no specific pattern and scattered pattern of bone marrow edema inside my joints both toe and in some parts of the foot are still there. The radiologist and podiatrist says they are scratching their heads on what this could be. They are doing nothing about it at this time. They’ve already taken 3 MRI’s (no fracture ) was noted. They took 3 CAT Scans & the last one revealed Luce cry at the calcaneaous (i.e. a non displaced fracture); however, the radiologist stated in his impressions that instead of a fracture, since my heel doesn’t hurt with the heel squeeze test- that perhaps I may have prominent intraosseaous vessel (i.e., hemangioma). I’m not sure how they make that jump & frankly my podiatrist doesn’t seem too concerned with any interventions at this point. I am sooooooooo confused at what could have happened since I have no fracture and no plan of action from my podiatrist. I’d like to know if anyone has dealt with something similar involving the foot and toes and did it go away and for how long did it remain. I’d like to know if this might all be due to the unfortunate cascade of events that occurred to me that I mentioned above, could it be due to the running after only a week from when I lost the 10 pounds from the diarrhea, but then gained them back the following week I ran- and could it just be that when I had the diarrhea my kidneys went the ringer from that. My foot looks like it has changed (the foot has become wider and the pressure edema hurts, but I can still walk, & the 3rd toe has a nodule on top of it. Plus, due to the edema the radiologist also noted mild scar tissue and fibrosis of the foot (not sure where that is at exactly). Please help!!

Ehleurs Danlos has been my life companion. After my second child (another story), I was diagnosed by an old country doctor and later by a geneticist. Many doctors use it to explain whatever they do not understand as it is a very wide reaching syndrome as connective tissues affects the whole body. Mine includes the absorption of calcium resulting in total hip replacements the revisions with titanium infused with calcium as EDS prevents my bones absorbing ÇA . Just to show that patients and doctors must think outside the box. No two patients are the same. It is passed through the female line and is of Northern European origin. Males are usually carriers females are the main recipients especially due to childbirth. Bottom line is to your own research and analyze your case well should you be a carrier. And, sorry to say, it gets worse with age (am almost 80) and you must listen to it.
Bonne chance!!

I have had very similar experience with right buttock for over 20 years. I can no longer sit at all and am now bedridden and am in severe pain. I have a pain pump but it doesn't seem to help. I've done all the tests many times like you and had 2 unnecessary back surgeries. I am desperate for help as I now have little quality of life.