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I am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: Oct 27, 2023 | Replies (198)Comment receiving replies
I am on the budesonide now. I don’t like the side effects, but it is helping some symptoms. It sounds like this med is not really going to heal anything. Have you tried the bile acid binders….however you say that. It has been suggested. Is hope for any remission even sane or should I just accept and get used to how life is now. I wonder about the monoclonal antibody…infusions I think? My medical care is so ineffective, I am so disappointed in how the Mayo in AZ has handled me.
So many questions and so frustrating to say the least I have such sympathy for ones who have it so much worse with gut issues. Celiac Hashimotos and LC are just about too much to get a grasp on.
Replies to "I am on the budesonide now. I don’t like the side effects, but it is helping..."
Cholestyramine is effective for most MC sufferers with bile acid malabsorption and it can be taken in concert with budesonide. It is by far the most-often-recommended aid to bile problems in MC patients and is definitely recommended for use prior to turning to trying the "biological" medicines such as Entyvio, which do not have as good a track record for effectiveness to this point according to early research.
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I am on Entyvio infusions, every 8 weeks, and it has made a world of difference in how I feel, almost normal. I asked my doctor how long I was going to need the infusions, he said for the rest of my life. It’s a small amount of time out of my life to feel good again. INFUSIONS WORK !!!!
Hang in there and don’t give up on searching for relief.
I know what you’re going through. Sometimes you need someone who understands and I do relate and understand.
Carol 👋