Connect
← Return to Celiac Artery Dissection (CAD)
Discussion
Celiac Artery Dissection (CAD)
Aortic Aneurysms | Last Active: Jun 11 10:06am | Replies (9)Comment receiving replies
I was diagnosed with Celiac artery dissection in May 2022. I have had 3 CT scans. I've seen a rheumatologist who did genetic testing on me for connective tissue disorder which came back negative I've seen two different vascular surgeons and both of them have told me that I should not feel any pain. I have been dealing with discomfort since the initial date for finding me in the ER and was transported to another ER via ambulance. I'm completely frustrated because I keep getting pushed around or pushed to the side because there's no treatment plan for this. I just don't want to be uncomfortable I have a dull aching back and abdomen daily some days are worse than others I don't know what to do or where to turn I'm hoping I can find some help with you guys thank you
Replies to "I was diagnosed with Celiac artery dissection in May 2022. I have had 3 CT scans...."
I too have a celiac dissection. It had been measuring at 1.6mm and now it is at 2.3mm. The best thing I can tell you is that YOU need to be your loudest activate! I had been diagnosed with a SMA artery dissection, but they said that I should not be feeling any pain. After 5 months of testing, surgery was performed and they were able to fix my issue. Had I(and my wife) vocalized our concerns, surgery may never have been performed and I would not be here today. Stand up for your self, say your prayers, and get the attention you need. Mayo clinic was great for me and I would recommend them to anyone!
Dan
Connect
I was diagnosed with Celiac Artery Dissection last month after two visits to the ER with the worst excruciating left Flank pain. Drs thought at first it was kidney stones. After three CT scans they finally discovered what it was & that a blood clot had form. Landed me in the hospital for 9 days. I have had many test done to try and figure out the cause and nothing yet. Thankfully medicine has worked & pain is no longer there. Hope they figure something out for you. Stay positive.