Increasingly Difficult to Accept Peripheral Neuropathy

I’m so sorry you are going through this. When we get diagnosed with any disease like PN we go through the different steps of morning. Neuropathy is not the end of the journey, it’s the beginning of a new one. I’ve had Autonomic Neuropathy along with Small Fiber Sensory Neuropathy for 15 years. You can survive this and you can prosper. We have all found ways to cope which gives you a measure of control.
Hang in there ( it’s not easy to say because I’ve had all the battles) but you could have gotten news that’s much more difficult to deal with.
Stick with us, we’ll help you through this.

Could you tell me how you were diagnosed with autonomic neuropathy. I had Quarst test and it was normal. Sweating has become a big problem for me. I have stenosis in back and cervical stenosis. I am going to Hersehy Spine Institute to be seen there. Don't know if autonomic dysfuntion is connected to stenosis. I don't have access to good doctors in Pittsburgh.

I am in desperate pain with the above condition. I take Pregabalin 150mg which will be increased to 2 00mg but it isn't working very well at all. Trouble is coming off it and might be even worse still. I am hoping that the doseage will be increased to a level that works for the pain. I cannot do much because of it save sitting around. No good but I am depressed and anxious because of it. What to do?

Hello,
I have recently been diagnosed with PN and I am in pain all day. I don't have any specific diagnosis yet. MRI scheduled for this Friday. The cold has also increased my pain level, and I am getting about 4-5 hours ""sleep". I have no idea what is causing most of my body to have these terrible sensations The other thing is that there seems to be no cure. We have to find ways of managing the pain, and psychological troubles. It is certainly not easy, and there seems to be no help. We do have to journey through life on our own, but it would helpful if people could hear how we are suffering. There are support groups. Some of them have Zoom meetings. It is a tough one...oh, I am 70 years old.

Hello,
I have recently been diagnosed with PN and I am in pain all day. I don't have any specific diagnosis yet. MRI scheduled for this Friday. The cold has also increased my pain level, and I am getting about 4-5 hours ""sleep". I have no idea what is causing most of my body to have these terrible sensations The other thing is that there seems to be no cure. We have to find ways of managing the pain, and psychological troubles. It is certainly not easy, and there seems to be no help. We do have to journey through life on our own, but it would helpful if people could hear how we are suffering. There are support groups. Some of them have Zoom meetings. It is a tough one...oh, I am 70 years old.

Hello,
I have recently been diagnosed with PN and I am in pain all day. I don't have any specific diagnosis yet. MRI scheduled for this Friday. The cold has also increased my pain level, and I am getting about 4-5 hours ""sleep". I have no idea what is causing most of my body to have these terrible sensations The other thing is that there seems to be no cure. We have to find ways of managing the pain, and psychological troubles. It is certainly not easy, and there seems to be no help. We do have to journey through life on our own, but it would helpful if people could hear how we are suffering. There are support groups. Some of them have Zoom meetings. It is a tough one...oh, I am 70 years old.

In reply to @pacodennis Have your ever used cipro or any other antibiotic of the fluoroquinolones family if you can recall.
I understand these antibiotics are known for their serious long lasting if not permanent side effects encompassing symptoms ranging from psychiatric and sensory disturbances to problems with muscles, tendons and nerves that continue after people have stopped taking the drugs. They call it being 'floxed'

Sweating so profusely is what started. I was in the emergency room having what they called a neurological storm ( it’s like dying but you don’t die. I’ve been through so many and each one I prayed to God to just let me die). You sweat like crazy, projectile vomiting, pain like I’ve never had before leg and hand tremors and I was in the fetal position, my heart rate was 170-180. A doctor who was a neurologist from a different hospital in Detroit was moonlighting helping out in the ER. When he saw me he knew exactly what was happening. He told them to hang 2 bags of NACL ( normal saline) and when that was done to hang 2 more bags. For dehydration. Then he instructed the nurse to give me bolus shots of morphine and Valium and within 10 minutes I was normal again.
The sweating I had all the doctors and paramedics never saw such a thing in the careers. I told them just let me walk around the hospital I will sweat so bad I would need to change my cloths.

Terrible to hear of your suffering. I try not to take duoxeltine because I am afraid it makes me sweat. I use clonazpam but I have stenosis of neck and some in back. I wish there was somewhere you could go to get some help. I stay away from eating all sugar and carbs. We may all have different reasons for neuropathy. Someone mentioned antibiotic quinoline. I wish we had a health care system that cared and not driven by profits. I don't know how to help you.
I am so sorry. Where are mentors from Mayo.