Anyone out there with Thymoma/Thymic Carcinoma

Posted by allisonsnow @allisonsnow, Jan 5, 2017

Am just trying to find anyone to have a discussion with that is currently or has had the struggle with either of these cancers.

Interested in more discussions like this? Go to the Cancer Support Group.

lmno | @lmno | Feb 14, 2022

In reply to @andylevine "Took quite a while to get back in shape." + (show)

2015, congratulations! I am looking forward to getting back in the gym! Right now I am walking 1 + mile everyday, and doing a little body weight "lifting". Have you ever had a recurrence of the Thymoma? Thank you again, for your help!

Colleen Young, Connect Director | @colleenyoung | Feb 22, 2022

In reply to @mddelaney64 "Colleen, I was diagnosed with Thymic Carcinoma and not Thymoma. My recovery from the sternotomy has..." + (show)

My apologies. I'll tag a few thymic cancer members I failed to mention like @boola @luque76 @shilo14 @ggaines118

You may also be interested in this related discussion:
- Thymic Tumors https://connect.mayoclinic.org/discussion/thymic-tumors/

shilo14 | @shilo14 | Feb 22, 2022

There is a Facebook group called Thymic Carcinoma that has 710 members. We are all touched by thymic Carcinoma, either as the patient, family, or survivor. This group contains a wealth of information. Feel free to join and all my best on your journey. Kristi

kisten23 | @kisten23 | Sep 25, 2022

Hello!

I was diagnosed with a Thymoma in February of 2020 and has it removed April 29, 2020. I want to share my story with people that are going through / have gone through the same thing. It has been so therapeutic to find this forum and read all of your stories. I documented my story here - https://1in1point5million.com/

I am here if anyone wants to chat.

Thinking about you all ♥️

joedeal | @joedeal | Sep 29, 2022

In reply to @kisten23 "Hello! I was diagnosed with a Thymoma in February of 2020 and has it removed April..." + (show)

I was diagnosed with thymic carcinoma 6/2022 and am in week 8 of a 12 week chemotherapy plan. Side effects of sleepless nights and quickly fatigued and now my hair is falling out. Hair and fatigue is fairly new and the fatigue gets to me the most. Wondering if it gets worse.

Colleen Young, Connect Director | @colleenyoung | Oct 15, 2022

In reply to @joedeal "I was diagnosed with thymic carcinoma 6/2022 and am in week 8 of a 12 week..." + (show)

Hi Joe, I'm tagging @kisten23 to make sure she sees your questions to her.

Fatigue is one of the toughest side effects of cancer and its treatments, especially chemo. You might appreciate the tips shared by members in this related discussion:
- Fatigue and cancer treatment: How do you cope? https://connect.mayoclinic.org/discussion/fatigue-in-cancer-treatment/

joedeal | @joedeal | Oct 17, 2022

In reply to @colleenyoung "Hi Joe, I'm tagging @kisten23 to make sure she sees your questions to her. Fatigue is..." + (show)

Thanks Colleen. I'll check it out.

joedeal | @joedeal | Oct 17, 2022

In reply to @allisonsnow "I have looked into some of the trials and I thank you for the list of..." + (show)

Hi Erin. I'm just wondering what you're current status is since your part is 5 years old. I was diagnosed with thymic Carcenoma this past June and I'm now in week 10 of a 12 week chemo plan. The best prognosis I've heard so far is that 55% of patients with this chemo live another 5 years. I deeply hope all is well with you. Blessings.
Joe

joedeal | @joedeal | Oct 18, 2022

In reply to @colleenyoung "Hi Joe, I'm tagging @kisten23 to make sure she sees your questions to her. Fatigue is..." + (show)

Hi Colleen. Do you know the status of @allisonsnow? I am hoping to chat with her. Considering that her posts are now 5 years old, that may not be possible. She is the only person I've found that has thymic Carcenoma. I'll be doing my 10th chemo treatment this afternoon. I'm wondering what the success rate is for treating this cancer. Do you know anyone that is willing to chat?

Colleen Young, Connect Director | @colleenyoung | Oct 28, 2022

In reply to @joedeal "Hi Colleen. Do you know the status of @allisonsnow? I am hoping to chat with her...." + (show)

Hi @joedeal, according to Allison's profile, she has not been on the forum since 2020.
I invite you to join this discussion where @anotherfinemass @shilo14 @gailkattouf @ggaines118 and others are talking about thymic carcinoma:
– Thymic Tumors https://connect.mayoclinic.org/discussion/thymic-tumors/

How are you doing on chemo? Side effects?