Hello @geck, I'd like to join @colleenyoung in welcoming you to Connect. I'm really sorry to hear about the problem you are having with the meds for the Parkinson's disorder. It can be difficult finding the best meds even without having to consider the transplant meds.

I agree with @hello1234 that your Parkinson's should be monitored by a neurologist, but I would suggest it be a Movement Disorder specialist. This type of neurologist is trained for movement disorders such as Parkinson's. Are you currently seeing a Movement Disorder specialist? This type of specialist can be found at major hospital systems. If you are not currently seeing a specialist of this type, please seek one.

Regarding the timing and dosage of Carbidopa/Levodopa (C/L), what problems are you having? Does it wear off too soon? If it is wearing off too soon you might ask your doctor about adding Entacapone. This is a med helps the C/L stay in the brain longer. As your medical problems are complex, your medical team would need to decide if this is a safe combination of drugs.

If you don't mind sharing more, what symptoms led to your Parkinson's diagnosis?