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Vitamin B12 deficiency and small fiber neuropathy

Neuropathy | Last Active: Dec 1 5:24am | Replies (87)

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@mikeg0822

Hi @rwinney thank you so much for checking in. Yes, I’m still treating the Bartonella. I had 8-9 days where I did really well. I had symptoms each day but very mild. However the last three days have been terrible with near constant burning and tingling. Really ruined the weekend. I’m not sure why it goes so up and down like this but I hope it’s a sign of healing. I had a follow up with my neurologist and am doing a skin biopsy in a few weeks. He feels confident that it won’t progress but also wouldn’t promise anything as far as recovering. But I’m trying to stay hopeful. How are you doing?

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Replies to "Hi @rwinney thank you so much for checking in. Yes, I’m still treating the Bartonella. I..."

@mikeg0822 Hey Mike, good to hear from you! I'm doing well, it's nice of you to ask. Ah yes, the rollercoaster of flares. Sorry about your weekend being ruined. The good news is that prior, you had a decent stretch and that tells you decent stretches are possible and will return. The burning does suck though. My legs used to feel sunburned and I could not have clothing touch them. I remember just focusing on my kids or family for distraction and learning the great art of ignoring. How do you manage the discomfort? What distractions help you?