Thank you for the information! You’re right that radiation is my biggest concern since it can add or contribute to other issues with bones & heart. Radiation is the “gift” that keeps on giving your entire life. I also keep in mind that everyone responds differently to the available treatments so what one experiences may not be the average response for everyone. I want to avoid a future cancer since there’s a bigger chance now for reoccurrence. I also realize the treatments are short term but every treatment has the potential to cause other medical issues many years later. I’m thinking long term damage, not a few years of side effects that can be tolerated or managed. I am taking Vitamin D3, 50,000 IU, 1x a week for 12 weeks & then we’ll retest to check the levels. My calcium tested within normal range. I’m not currently on meds for the high cholesterol since my GP was keeping watch on the levels which are just into the high range. I did request an Oconotype DX DCIS test. That was another fiasco to get it ordered. I initially wasn’t sure which of my doctors ordered it so I started asking just before my lumpectomy. The surgeon told me the Oncologist ordered it, I saw her &asked but was told the Radiology Oncologist ordered the test. I saw her 2 days later & when I asked she was surprised the Oncologist told me that. I felt this test was extremely important, I was adamant that I get one & I’m 100% positive I didn’t “misunderstand” what my Oncologist told me. I sent a message to my Nurse Coordinator stating it didn’t matter to me which dr ordered the test, just please get it ordered. The Oncologist quickly messaged back stating she had to wait until the pathology report came through to order it but she did order it. Not what she initially told me so now I have trust issues & will probably switch, especially if the Cardiologist says I need treatment of some type. This is the last piece of information I need to help figure out which type of doctor would be the most beneficial for my healthcare. I’ll look for a Cardio Oncologist to manage all the meds if my Cardiologist visit in a few weeks indicates heart treatment is necessary. It’s been 2 weeks & I haven’t received a result yet. Does anyone know approximately how long it should take for results? I’m not even confident the test was even ordered. In dealing with all of this I feel like there’s enough stress we’re under & not having confidence in your team just adds to the stress.
This site is a blessing! I wouldn’t wish cancer on anyone but sadly, it’s somewhat reassuring to know there are 100’s of women out in the world that are on a similar journey & can share experiences with each other so we all know we’re not alone! Meanwhile, I’m enjoying this life & taking it one day at a time. 🌻