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Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Blood Cancers & Disorders | Last Active: Feb 7, 2023 | Replies (6)
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@colleenyoung

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of diagnoses, like @sunnyside17 @jak2mpnpositive @claire39 @nohrt4me @nohrt4me @granniet @stimme @scottmatteo

Here are a couple of related discussions:
- I have JAK2 ET and MPN: Anyone else have these symptoms? https://connect.mayoclinic.org/discussion/jak2-et-and-mpn-symptomscause/
- Myelofibrosis* https://connect.mayoclinic.org/discussion/myelofibrosis-24a025/

Create, I look forard to getting to know more about you. It sounds like treatment has not yet been successful. What is being suggested as the next step with your doctor(s)? Are you in the care of a hematologist?

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Replies to "Welcome @create. I'm tagging a few members who may be familiar with your unique combination of..."
create | @create | Oct 18, 2022

Currently receiving iron infusions once a week and blood transfusions when hemoglobin drops below 8.0. Stem cell transplant has been discussed but my age is negative factor.
I had a pill cam and enteroscopy with cauterization of two non bleeding but inflamed AVMs in jejunum.
Waiting to see if that could be cause of iron deficency. Another iron infusion this week. So far the 5 units of blood and 7 iron infusions have not moved my numberd.

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