Hi @caretakermom 😊
Absolutely, feel free to PM anytime! And of course, I assume we will have many, many, many future discussions together as new challenges arrive for us on this transplant journey.
The great news is that I find this Mayo Connect Transplant Group of people to be incredibly supportive and smart!! Everyone has wonderful insights and is open to sharing their experiences.
I love to get "the team's" thoughts when I have a new concern. Don't hesitate to post a new discussion when things come up. Everyone normally jumps in to help.... It's terrific!! And getting lots of different experiences and varied advice can be very helpful.
Regarding my Tac, I started on long-acting Envarsus XR immediately after transplant. I was never offered a different Tacronlimis drug.
Maybe they gave it to me because my insurance plan from work covered it? I am not sure how they decide which Tac to give which patient but it may be whichever Tac drug that insurance company covers? It is convenient to take once a day in the morning. But I don't think there are any other medical advantages. When I started on it, it definitely gave me shaky hands. My local nephrologist always commented when he saw me hold anything. I think the shakes have improved, but I am still a little shaky. (Maybe now it's just stress that gives me shaky hands!) 😊 If the long-acting version is not covered by your insurance, I wouldn't think the "once a day" rather than twice a day would be worth any additional expense since your hubby needs to take the Myfortic twice a day anyway. Is your husband taking Envarsus, but just not the XR version?