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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)
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@emcdanie2006

Hi Rockitman,

I have ITTp and on 2 nd RITUXAN treatment.

My doctor tries not to allow my Adamst13 to go below 40. Recently, AdamsT13 dropped
from 42 IU/ to
ADAMTS13 activity, IU/mL Plasma 0.34 IU/mL . This also decreases my platlet count when the Adamst13 gets activated or
triggers my body to go into high alert. The infusion drip is slow due to the immunotherapy, 3-4 hours per treatment works for me. The Adamst3 will not moved until after the 5th round of treatment.
Rituxan works for me, thus far, prayer, digesting iron rich foods, and trying not to get sick gas been a winning plan.

Hope you get a 2nd opinion, as iTTP is a rare blood disorder . Hope you find a good hematologist that has knowledge on rare blood disorders.

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Replies to "Hi Rockitman, I have ITTp and on 2 nd RITUXAN treatment. My doctor tries not to..."
rockitman | @rockitman | Oct 15, 2022

Thank you for the info, I appreciate your time and hope the best for you.

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rockitman | @rockitman | Oct 16, 2022

Good morning. I was told I had ITP by my first Dr. But I changed Dr's when he told me there was nothing wrong with me since the CBC showed no "Markers" for Cancer.
My second Dr has given me 5 different Diagnosis in as many weeks. My current diagnosis is
Megakaryocytic Hypoplasia. Basically, my immune system killing my own blood cells.
I have had the one treatment with no side effects last Tuesday, next treatment this coming Tuesday, then two more to follow each Tuesday, total will be 4 treatments.
I don't know what Adamst13 is, I looked it up and still could not figure it out.
I hope all goes really well for you, I surely know how this can act negatively on your mind.
I stay busy as much of the time as I can to keep me occupied on other things.
How often can you take Rituxan? I thought it was a onetime deal.
I'm glad to hear it is working for so many people. I hope it works for me too. My platelets are getting lower each day.
It's in Mayos hands now hopefully they can help me.
Thank you for the information .

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