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@hello1234

Thank you so much @caretakermom for your response regarding your friend's experience with the BK virus! It's extremely helpful and comforting to hear a success story like that. I am at my 2 month mark and I am hopeful that it clears in a month or two more like your friend. It's stressful and hard not to think about the virus on a daily basis.
Regarding Facebook, would you believe I am the only person on this earth that is not a member of Facebook? But once I became a transplant, I started to think that maybe the Facebook support groups would be helpful, but I didn't join once I found this Mayo Connect site. Maybe I will revisit the idea of joining Facebook too.
Regarding your hubby's meds, my Tac trough is also 6-8, and it normally comes in at 6. I take my Envarsus XR once a day in the morning. I take 6mg with my breakfast. I know the optimum way to take it is without food, but I need food with my meds to avoid stomach issues. I could probably take less Tac medication and achieve the trough range if I took it without food, but this schedule seems to be working for my body.
Please continue to keep me posted on your hubby and his WBC. I am very hopeful that at his current reduced meds and no Valcyte, he should be at 3.0 in a week or two. (and at the dentist!). I will keep you posted on my BK journey too. Thank you again for being such a good friend @caretakermom 😊
You are extremely knowledgeable and kind.... Your wonderful hubby is in very good hands!

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Replies to "Thank you so much @caretakermom for your response regarding your friend's experience with the BK virus!..."

Hi @hello1234, may I asked why how long you've been taking Envarsus XR? Were you ever on Tacrolymis and if so what was your dosage? Did you have a reaction to Tacrolymis? I've heard the extended version is a better drug because it's only taken once a day and doesn't cause shakiness. But it's also a lot more expensive. But to me though, I would rather take a better drug over cost, if it means better for my body!
Thank you for taking the time to answer my questions and giving valuable inputs
. I hope I can get in touch with you again with other Mayo/transplant related issues. Will it be OK for me to PM you whenever I have other questions?

@hello1234, may I ask how long it took your WBC to restore after you got off Valcyte? Labs drawn on 10/17/22 came back and show WBC is even lower, after getting off Valcyte. Waiting to hear from provider whether they want my hubby to get neupogen shots which would help bring up WBC quickly. I did not expect WBC to trend down, had expected the same or higher. Had to postpone dental appointment once again. Worried this may become mouth infection!!