Thank you so much @caretakermom for your response regarding your friend's experience with the BK virus! It's extremely helpful and comforting to hear a success story like that. I am at my 2 month mark and I am hopeful that it clears in a month or two more like your friend. It's stressful and hard not to think about the virus on a daily basis.
Regarding Facebook, would you believe I am the only person on this earth that is not a member of Facebook? But once I became a transplant, I started to think that maybe the Facebook support groups would be helpful, but I didn't join once I found this Mayo Connect site. Maybe I will revisit the idea of joining Facebook too.
Regarding your hubby's meds, my Tac trough is also 6-8, and it normally comes in at 6. I take my Envarsus XR once a day in the morning. I take 6mg with my breakfast. I know the optimum way to take it is without food, but I need food with my meds to avoid stomach issues. I could probably take less Tac medication and achieve the trough range if I took it without food, but this schedule seems to be working for my body.
Please continue to keep me posted on your hubby and his WBC. I am very hopeful that at his current reduced meds and no Valcyte, he should be at 3.0 in a week or two. (and at the dentist!). I will keep you posted on my BK journey too. Thank you again for being such a good friend @caretakermom 😊
You are extremely knowledgeable and kind.... Your wonderful hubby is in very good hands!