Connect
← Return to Anyone experience multiple CMV resurgences post kidney transplant?
Discussion
Anyone experience multiple CMV resurgences post kidney transplant?
Transplants | Last Active: Dec 29, 2022 | Replies (107)Comment receiving replies
Hi @hello1234, this week's lab shows CMV is undetectable which will be 3x in a row. Provider says he can discontinue with Valcyte but continue to do weekly labs. They will increase Myfortic when CMV continues to be undetected. Unfortunately his WBC continues to deplete, latest lab shows 1.4, down from 1.8 so I'm not sure when he can visit dentist for dental work.
Worried because I don't want him to end up with mouth infection!!
Replies to "Hi @hello1234, this week's lab shows CMV is undetectable which will be 3x in a row...."
Connect
Hi @caretakermom 😊
Congrats on the news that the CMV is now undetectable for the third time! . ..And that hubby can discontinue the Valcyte! WIN- WIN
What reduced dosages of Myfortic and Tacronlimis is your husband currently taking? Before starting Valcyte for the CMV, did your husband have a low WBC from these two meds or are you pretty confident that the Valcyte is the culprit?
If it's the Valcyte, it just may take another week or so for his body to rebuild the WBC now that the Valcyte is gone. (I know there can be a delay of a week or so after stopping a med, for an adverse reaction to correct).
I think you are getting very close to a dental appointment. I wouldn't be overly concerned that the WBC bounced a little lower on one lab.
I think it will recover quickly now that Valcyte is stopped. And don't be overly concerned about a dental infection since your plan is to get an appointment asap once the WBC is 3.0.
I know how nerve-wracking this can be, but you are almost at the finish line!! CMV is gone and Valcyte is gone. Yeah! The 3.0 WBC will follow very soon.
You are a wonderful caretaker!!
😊❤😊