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Osteonecrosis/ Avascular necrosis

Bones, Joints & Muscles | Last Active: Jan 31 8:44pm | Replies (18)

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@coramayo

I have already had 2 joints replaced and scheduled for a third surgery in a few weeks. I will have to have a fourth surgery since my right shoulder bone has already started to collapse.
So it will for both shoulders and hips collapsing in one year. I just found out I have it in both knees but still early maybe stage one or two.
I feel desperate to find a doctor to over see my care
I see in the Mayo Clinic link you provided AVN can be treated with blood thinners and cholesterol lowering medication. I’m already taking osteoporosis medication.
Trying to find a doctor who can recommend and manage this medication approach to treatment. I’m sure it’s in many joints in my body.
Finding challenging to find a knowledge doctor. Possibly an endocrinologist and or Rheumotologist. I have been to several over this past year.

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Replies to "I have already had 2 joints replaced and scheduled for a third surgery in a few..."

What is your diet, to begin at the basics for good joint health? When I gave up sugar in my diet, I could actually feel the improvement in my joints without any additional medicines so it seems to me that I should recommend this as a basic treatment, and then look for medication which does not cure but aids in lessening pain. Certain exercises improve muscle strength around the joints, but that recommendation needs to come of the therapist who knows your particular condition better. Patients need to look to a balanced and improved diet as a starting point, even though sometimes it is a little late to prevent replacement.

@coramayo, this must be so difficult for you. Yes, finding the right doctor to oversee your care can be very challenging. Have you been to a major medical center or university/teaching hospital? If you are considering The Mayo Clinic (Minnesota, Florida, Arizona). Here is the link:
https://mayoclinic.in/1mtmR63
The Mayo Clinic also has a Care Network of hospitals which have access to all Mayo’s knowledge. That link is:
https://mayoclinic.org/about-mayo-clinic/care-network/members
Let me know what you learn.