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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)

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@marshelle

Has anyone dealt with myxofibrosarcoma in the elbow? Hubby's tiny bump was originally diagnosed as bursitis. After postponing "bursitis" surgery due to DVT, mass had grown and fungated. Ortho doc finally realized no bursitis and did biopsy. Huge mass removal, brachytherapy (radiation twice a day x 5 days), wound vac, then took skin from leg and graft for flap to close. By then axillary lymph node affected and several small lung nodules. Chemo x 5 and all but one stable, rest of lung nodules gone. 3 months later lymph node still enlarged. Back to surgery to removed 12 nodes, only one was cancerous. All healed. Go back in 2 weeks for CT but for a couple weeks he's mentioned back pain. As I'm sure everyone knows, any ache or pain makes you shiver. Anyone have recurrence of MFS other than first origin?

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Replies to "Has anyone dealt with myxofibrosarcoma in the elbow? Hubby's tiny bump was originally diagnosed as bursitis...."

Welcome, @marshelle. Oh yes, I believe @jonezzi and @4me, who also have experience with myxofibrosarcoma, know about feeling any ache or pain and the worry that it may be the cancer returning. It's a common fear among all cancer patients. @hopeful33250 has had her cancer return three times. I can imagine you and your husband are worried and the next 2 weeks will feel long.

Back pain of course can be caused by a thousand different things from exercise, raking leaves or even from immobility and not moving. Has your husband done anything new (or been inactive) that might cause back pain? Is it new?

Have you considered calling to let your oncologist know about the pain? She/He may wish to investigate or expand the order for the CT scan to include the back.