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DiscussionWhat’s the science on diet and MGUS/SMM?
Blood Cancers & Disorders | Last Active: Apr 23, 2023 | Replies (53)Comment receiving replies
Replies to "Sound similar!This is so interesting as I have had MGUS now for 12 years and all..."
Please forgive me for suggesting something else to look into, but have you tried a sleep study yet? Getting adequate sleep cures and prevents a number of ills, some of which you mentioned. I’ve been using an AutoPap for 23 years for obstructive sleep apnea and sleep very well. (Watching IgM Kappa MGUS.) Hope this is helpful.
@mascot Welcome to Mayo Clinic Connect. I'm glad you found us, and that you can report so many years with MGUS that has not progressed! Many members here worry about MGUS evolving quickly into other issues.
While I am under chemo for multiple myeloma, many of your symptoms are the same as what I have experienced. What has been beneficial for me is getting a good diet started, with as few processed foods as possible. And as others have mentioned, yes, that means cutting way down on sugars. Beyond that, getting moderate exercise, even when you don't feel like it, or especially when you don't feel like it. If you feel unstable on your feet, use an aid, whether it be a cane or rollator; don't try to tough it out and fall! Take little naps if possible, when you feel the need. My cat loves the nap-with-cat-in-my-lap time! Taking Tylenol on the worst days seem to help me smooth my reactions, and as we head in to the colder months now, I keep that bottle handy.
I see you mention bench jones proteinuria, which indicates there is some kidney involvement. Do you have a nephrologist monitoring you, also? Please don't feel like a hypochondriac! Our bodies are indeed miracle machines, and we can have so many things manifesting, it's hard to be positive.
Ginger
Welcome, @mascot. I think @pmm @gingerw @circawdm @raye @carolee888 and others may have some thoughts for you about unspecified symptoms. They are so frustrating.