1. < Osteoporosis & Bone Health

Forteo vs. Tymlos: Which did you choose?

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

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windyshores | @windyshores | Oct 10, 2022

The dose is adjustable and I could ramp up on Tymlos. Forteo is full dose only and I could not tolerate it. I feel a lot stronger after a year on it. DEXA in March.

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nancyoinnc | @nancyoinnc | Oct 11, 2022
In reply to @etartaglione "I have been taking forteo for 10 months no side effects but I also juice 50..." + (show)
@etartaglione

I have been taking forteo for 10 months no side effects but I also juice 50 oz of vegetable juice daily I can't wait to see the results

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Beware of overdosing on beta carotene (too much carrot juice, especially)-- there have been cases of retina damage. In one case, a patient with stable macular degeneration ( documented as stable for years) received a juicer as a gift and overdid it on carrot juice, and her retina destabilized into geographic atrophy over the next 6 months. I say this as an eye doc, who owns a juicer and loves fresh vegetable/fruit juices! I just don't juice massive quantities, and I use as a guideline only consuming the juice of as much of the veg/fruit as I would consume by chewing.

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etartaglione | @etartaglione | Oct 11, 2022

thank you dock but i can not take antiflamitory drugs and i juice for pain and inflimation

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applesforall5370 | @applesforall5370 | Oct 12, 2022

I took Forteo for two years from a crushed lumber spine form osteoporosis. Mayo doctor said after that I regained 14% bone loss.

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etartaglione | @etartaglione | Oct 12, 2022

WOW that was great what was your count before and after 1 year I am due for a test next month that would be 1 year on Forteo I am happy for you!!!

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janflute | @janflute | Jan 4, 2023
In reply to @jmanj "General note about traveling with Forteo. I found a “system” on Amazon called an “Insulin Cooling..." + (show)
@jmanj

General note about traveling with Forteo. I found a “system” on Amazon called an “Insulin Cooling Bottle Medicine Cooler”. It basically consists of a double-walled metal thermos with a “bio-gel” freezer bottle that drops inside it. It comes with a thermometer to place inside the cooler, but since it only shows the current temp, I am using a high-low-current thermometer that I have. That way I can see not only what the current temp is (Forteo needs to be kept between 36-46 degrees Fahrenheit), but what the highest and lowest temps have reached while the Forteo is in the thermos. I tested the system, checking the temps every 8 hours, and it maintained the safe temps for more than 36 hours. I’ll be using this on an upcoming trip instead of the soft-side cooler with freezer blocks I have used in the past (that only worked “OK”).

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I looked onAmazon, but there are so many I am not sure which bottle to buy. I am going to Cozumel for two weeks. Please help!

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nancyoinnc | @nancyoinnc | Jan 5, 2023
In reply to @electii "Forteo has a $4 co-pay if you register on their site and provide that number to..." + (show)
@electii

Forteo has a $4 co-pay if you register on their site and provide that number to your pharmacist.

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Only if you qualify financially! I was told this too but we are retired and our passive income is above their threshold.

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electii | @electii | Jan 5, 2023

Hmm interesting. I was told you qualify if you have commercial health insurance regardless of income. It doesn’t work if you’re on Medicare

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ssapp1 | @ssapp1 | Jan 5, 2023

I have been on both. Right now I’m on Forteo. The only side effect I had with Tymlos was dizziness. So I did injections at night. I’ve been on Forteo for 2 months now, no side effects so far.
The FDA approved Forteo for long term use. The 2 year limit has been over-ruled.
Although, Forteo has to be refrigerated, I don’t find that a hassle. When traveling, You can take a thermal type lunch bag with an ice pack and it should do just fine.

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katwhisperer | @katwhisperer | Jan 5, 2023
In reply to @windyshores "The dose is adjustable and I could ramp up on Tymlos. Forteo is full dose only..." + (show)
@windyshores

The dose is adjustable and I could ramp up on Tymlos. Forteo is full dose only and I could not tolerate it. I feel a lot stronger after a year on it. DEXA in March.

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@windyshores thank you for sharing your experiences across so many helpful posts!

Do you know if there are any published articles or comments from other physicians or Tymlos themselves re: this appealing option to start lower & gradually increase by # of clicks?

None of my docs have heard of this - their Tymlos reps don't seem to know or mention it either. Just wondering if it's something your doc was smart enough to suggest because you experienced problems prior - or if it's a known approach across the board?

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