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Rare Prostate Cancer

Prostate Cancer | Last Active: Jan 11, 2023 | Replies (10)

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@librarygirl

A lot has happened since the original post. Stage 4 Prostate Cancer that has metastasized to the lymph nodes and bones. Lymph nodes are swollen all over and put pressure on the kidneys, which ultimately caused acute kidney failure shortly after my original post and led us to a nephrostomy on both left and right kidney. Right side is up and running again, but the left side has no output and is giving us concern. We started Firmagon and are getting ready for chemo (taxotere) later this week. So much has happened so quickly that we have not received a second opinion.

Does this story resonate with anyone? Recommendations on where to go from here?

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Replies to "A lot has happened since the original post. Stage 4 Prostate Cancer that has metastasized to..."

@librarygirl, oh that's a lot to bear and so quickly. You must feel breathless to continually keep up physically and emotionally with all the developments.

There is a discussion about Firmagon and bone metastasis here that may interest you:
- Stage 4 prostate Cancer: Firmagon + Abiraterone? https://connect.mayoclinic.org/discussion/stage-4-prostate-cancer-metastasis-to-bones/

@rso is also dealing with a nephrostomy:
- How long did you have a Nephrostomy? https://connect.mayoclinic.org/discussion/nephrostomy/

Library Girl, I hope you and your husband are able to snatch brief moments to just take a deep breath.