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Increasingly Difficult to Accept Peripheral Neuropathy
Neuropathy | Last Active: Aug 27, 2023 | Replies (163)Comment receiving replies
There is an older discussion on the same topic as this discussion that I thought it might be helpful to see if some of the members from that discussion might have some additional thoughts to share here in this discussion.
@jshdma, @harriethodgson1, @jimhd, @oldkarl, @thankful, and @artscaping shared their thoughts in the discussion started by @keeptrying back in 2017. I thought they might have some new thoughts since they last posted on the topic here:
-- Acceptance: Anyone have difficulty accepting new limitations daily?:
https://connect.mayoclinic.org/discussion/acceptance/
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The biggest problem I have with my diseases comes from my family. They seem to be obsessed with the idea that it is their right to tell me what I can or cannot do with my situation, such as drive, or exercise, or go to church. I know I have a variety of diseases which will hold me back, but I am still alive. And each disease bites me in a different part of my "you-know-what". My eyes are going. I have Torres del Muir from knees up to scalp. Every cell has its own cancer. I have had 55 cancer surgeries now. LGMDr23, GSN, TB, CPVT, CMD, DEE, PYGM, RELN, MY, CF, RANP11-9 CCND1, ETC. PER3, SLC0181, DU0X2, SERPINAL, LI FRAUMENI-S, FKBPI4 (EDS). ETC. My body keeps me informed. oldkarl