Hi @fundytide, welcome to Connect.
I moved your message to this thread so that you can connect with other women who have triple negative breast cancer. @kimlofdahl @cosette @terrianne, what ongoing side effects or late-stage side effects have you experienced post treatment?

 Late side effects I have experienced include lymphedema after 16 nodes were removed (only 1was positive).  It was initially something that I didn't have, but about 3 yrs. posttreatment it gradually developed. I continue to need on and off p.t., wear a sleeve/gauntlet,and now have a pump.  All of these things help. I also had a specialist test me for anew surgical technique to repair lymph flow.  I was not a candidate for that, at least notin the least invasive manner.  I do hope someday there is a "cure" for this condition.Good luck to all the Triple Negatives out there.  Keep fighting the good fight.Cosette

I was dxed w/ triple neg breast ca, grade III in Nov. 2004. I had the lumpectomy the same month, followed by chemo, then RT. I was tired for at least a year and ended up shortening my work week from 40 hours to 30 hours permanently. I remember the brain fog. Chemo recovery takes a while. Keep in mind that chemo knocks out healthy cells as well as malignant ones. The healthy cells recover, but it takes time. Your fatigue is unpleasant (to but it no strong get than that) but normal.

Don't remember having GI problems, at least not any worse than I already had them. The good news: it's 2016 and I'm cancer free in that breast. The bad news: once you have had cancer in one breast you have a higher risk of developing cancer in the other breast which is what happened to me. In 2013 I was dxed with a stage I, estrogen+ breast cancer, grade II, in my other breast. I had a lumpectomy and RT for that and so far, so good, no recurrence.

I'm taking oral chemo which is much better that the two other kinds I took which made me feel like I had been run over by a truck. The side effects for all these drugs suck but bear in mind that your oncology team has rolled out the VERY heavy artillery to ensure your survival. With time, the side effects, while extremely difficult to tolerate now, will eventually disappear or at least lessen. Also bear in mind that if you feel lousy, imagine how the cancer cells are feeling!

Triple negative is survivable. Don't let anyone tell you differently. I'm 12 years out from my triple neg, grade III dx.

Welcome to Connect, @berit. Thank you so much for sharing your story here. It's so helpful to hear from others who have been there!