Connect
← Return to Low Platelets with Myelodysplastic Syndrome (MDS)
Discussion
Low Platelets with Myelodysplastic Syndrome (MDS)
Blood Cancers & Disorders | Last Active: Jan 24, 2023 | Replies (39)Comment receiving replies
Are his feet and ankles swollen too? Sometimes edema can be caused by poor circulation. Have you mentioned this to his cardiologist? Has he eaten more salt that usual in the past day or so. Any difficulty breathing? Pain? Sitting more than normal for him?
Try having him move his arms, hands and fingers every hour by putting his arms over his head, opening and closing his hands to promote circulation. He can even add a walk around inside the house at the same time. If they stay swollen it would give you some peace of mind to give his cardiologist a call. Of course, if you feel it’s an emergency don’t hesitate to call sooner.
Replies to "Are his feet and ankles swollen too? Sometimes edema can be caused by poor circulation. Have..."
Hi Lori,
I'm back with questions...I just got home a little bit ago; my husband was told to go to the ER today because he woke up with a headache and had a fever of 100.8 (they told him to call if it went above 100.4). We were in the ER for 7 hours. His temp registered at 103.4 (forehead scan) then 102.7 (under the tongue) at 2:25PM (we got there around 1:00PM), then he registered 102 (forehead scan) and 102.9 (under the tongue) at 6:28PM. He had two transfusions this week, both blood and platelets. They had him go to the ER on Tuesday night after getting his non-treatment week bloodwork done. His WBC's were 3.42, RBC's were 1.84, Platelets were 13, Hemoglobin was 6.4. Last treatment was Nov. 22 (Vidaza); the above test was done on Nov. 29. He ended up get one transfusion then, and another one on Dec. 1.; WBC=3.17, RBC=2.13, Platelets=14, Hemoglobin=7.5. Today in ER the only lab I can currently know is Neutrophils at 1.38 (others haven't been posted yet). They don't know what is going on and admitted him. They did a chest x-ray and also cat scan of his head; I have not received that info yet either. Tested negative for Covid and RSV. Does any of this sound normal given his MDS and Vidaza treatment? He had taken Tylenol at 8AM but that didn't help the headache, and they gave him more Tylenol at the hospital (he's on meds for chronic AFIB and high blood pressure. Thanks in advance for any info you can provide.
Connect
Thanks so much for the quick reply! No swelling (this time) with ankles (it was only ankles, not feet last time). I did mention the swelling to the cardiologist when I talked about the shortness of breath (yes that was the call that landed us at the ER and thus began this journey). If it's not better tomorrow I'll call the doctor we are scheduled to meet Tuesday as a heads up...we'll see where that leads. Thank you again so much for the quick response!