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Are your heart symptoms worse in morning, better as day progresses?
For those suffering with tachycardia, fatigue, orthostasis and post exertional malaise: do you notice symptoms are worst in the morning and gradually improve throughout the day?
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We don’t know which condition since all my labs come back normal. We are just treating like any other autoimmune condition. I am to do blood work every 4 months or so until something comes up. But I do have a dx of POTS.
I'm very sorry to hear this, and I understand what you mean about learning to live with it. I am being very careful now about what I introduce into my system -- like very, very careful. I know what foods work well for me (don't cause inflammation) and I can feel when I am overextending myself in any way. And I certainly am not going to introduce any boosters or other immunizations at this time. I know my immune system has been working so so hard to recover from Covid and from long-haulers, and my personal feeling/experience is that treating it ever so carefully, like a newborn baby, has given me good results. It does take time though, and it is a slow process. This is not a normal illness where someone can bounce back after a week or two, or even a month or two, and I know how incredibly frustrating that is.
Not to scare you but just to let you know... I have a good friend in heart failure right now. He's in his early 40's, very much in shape, and is also an avid runner. He was running 40-50 miles per week, prior to getting vaccinated. And unfortunately he is one of the young men who had a really adverse reaction to the Pfizer vaccination. So, he's learning to "live" with heart failure, because no one has answers for him, and running is still what brings him joy (so he manages).
I am so sorry about your friend. I do have a question. My doctor agrees I should have no more boosters or vaccines. But what do you think about the flu shot?
I stopped getting a flu shot years ago. My parents took me annually when I was a kid. One year, for whatever reason, I didn’t go with them—I was a teenager by then. And I realized I didn’t get sick at all that winter. Prior to that, I wasn’t getting the flu but I was getting constant colds and sinus infections that kept me miserable. Once I stopped getting the flu shot, I stopped getting sick all winter long.
I personally believe one size does not fit all when it comes to medical care. So the best thing we can do is know our own bodies well, in order to make truly well informed decisions.