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Essential Thrombocythemia (ET) and viruses

Blood Cancers & Disorders | Last Active: Dec 13, 2023 | Replies (53)

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@arti4

@claire39, @loribmt
Thank you both for you input. I definitely will need to be more careful. Life is different now.
I’m wondering about the ET…I know the bone marrow is making too many platelets, but is it also producing too few white cells and or macrophages? Is this part of the illness along with the overproduction of platelets? Does anyone know the answer to this? I haven’t seen this anywhere.
And yes, I’ve had two covid tests this past week and they’re both negative, thank God. I’m grateful for this forum, knowing I’m not alone. Thank you.

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Replies to "@claire39, @loribmt Thank you both for you input. I definitely will need to be more careful...."

With ET, from my understanding, with your bone marrow producing too many platelets, it is also crowding out the vital red and white blood cells. So with a reduction in the white blood cells, which are the guardians of our body, your immunity is compromised. There are defective cells as well and that also plays into the equation. A lower amount of red cells will leave you feeling more tired.
How were your other blood numbers on your last CBC?

It’s a relief you’re negative for Covid. So hopefully this current cold will subside fast and get you back to normal. I don’t have ET but I did have an aggressive blood cancer 3 years ago. Totally in remission now after a bone marrow transplant. But one of the hardest things I had to learn is to “listen to my body”. So if you’re tired, make sure you take naps during the day. Eat healthy, of course, but resting is key. Also drink plenty of water each day, that helps quite a bit.
Life is different now but it doesn’t mean worse. It just means different. The cool thing as humans, we can learn to accept, adapt and move on. Your new diagnosis doesn’t have to define who you are. ☺️ Accept the changes, you’ll learn what your body can handle and then start fresh from there.

I’m happy you found Connect too! It’s quite an amazing forum for support, encouragement and help from others who are going through similar challenges.
What’s your schedule for blood work?