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Fear of radiation after lumpectomy

Breast Cancer | Last Active: Mar 9 5:46pm | Replies (129)

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@rene1636

I’m thinking against radiation for my situation & am wondering if anyone else has/had a similar situation. I was diagnosed with DCIS grade 2, ER/PR+. The area of DCIS was small, .2cm dimension. I has a Stereotactic biopsy that apparently removed all of the DCIS. I had a lumpectomy to be sure nothing remained. The pathology report came back with zero cancer present, confirming it was all already removed. I’m still being recommended for radiation since this is “standard” care. After extensive research on radiating the breast & seeing the problems that can continue to present years later I’m thinking about passing on radiation. My thought is that since you can only radiate each breast 1x & if I did have a reoccurrence in the same breast of DCIS or an IBC then my only choice left would be a mastectomy if I follow through now. I will try the hormone suppression since my type was positive for both. I’m currently waiting on results for the Oconotype DX DCIS genomic test to see what my chance of reoccurrence is & I’ll finalize my decision depending on the results.. I will be monitored every 6 months by a mammogram followed by a breast MRI 6 months later so anything that shows up would be caught early, within 6 months. If so, then another lumpectomy might be possible instead of a mastectomy. I’d like to keep future options open since I now have a higher statistical chance for another breast cancer since having DCIS.

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Replies to "I’m thinking against radiation for my situation & am wondering if anyone else has/had a similar..."

If you live near a proton radiation center, talk the radiation oncologist. I had 16 treatments post left mastectomy and did fine. Google proton radiation and read about its amazing release of all of the energy right at the target. Good luck.