I have written a lot of posts about my experience with dosing for Tymlos. My first attempt with a full, or even half, dose caused a lot of side effects for me: headache, dizziness, chest pressure, heart palpitations (I landed in the ER with an afib episode which may or may not have been related, since I have had episodes before).

I called Tymlos and their pharmacy NuFactor, and threw out my pens. Then I talked with cardiologists and endocrinologists- two each. I was deciding between Evenity and restarting Tymlos at a lower dose. Since we can take Evenity after Tymlos but not the other way around (to my knowledge and according to my doc, but check this), I chose to try Tymlos again.

The Tymlos pen has 8 clicks. I started at two clicks. I moved up slowly over 2 months, ending with 6 clicks (doc was happy) and after another month or so, to 7 clicks. I have been on 7 clicks for at least 10 months now. For the last few months I have had no side effects- zero. Maybe a little fatigue but hard to tell (taking care of an elderly mother is tiring in and of itself!)

This morning, after all this time, I again tried 8 clicks. Full side effects, chest pressure, heart palpitations, headache, woozy.

I am just hoping that this info that ONE click makes that much difference, might encourage others to play around with dosing.

We can benefit from dosing of 6 or 7 clicks, which according to my doc is a lot better than giving up altogether after sticking with 8.

And if you have side effects at a low dose, wait a week or two and your body will adjust, then go up a click. You will know when you have reached your tolerable effective dose. For me it is still not 8 clicks!

I am very motivated because I fractured. The problem with motivation with osteoporosis is that we don't feel it until we fracture. I wish I could go back and do Tymlos before fracturing, but I did not know the dose was adjustable and Forteo was not tolerable for me (no clicks on that pen). Good luck everyone!

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