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Loss of taste after liver transplant
Transplants | Last Active: May 23 7:48am | Replies (42)Comment receiving replies
Yes we have a transplant coordinator for some reason when she calls it goes straight to voice mail. Yes the shakes are great 30 grams of protein on each one. Seems like breakfast is the only meal I can get her to eat trying to get fruits and veggies in her is the hard thing her potassium levels keep yoyoing. I really just wanted to make sure she is getting the right vitamins so she heals properly.Thank you for letting me know this happens.
Replies to "Yes we have a transplant coordinator for some reason when she calls it goes straight to..."
Hi Cherismike @rosemarya asked me to share some of my difficulties after transplant with eating. I'm not sure which drug it was but one of them sure made food taste bad. The 2 things I really likes the most are salads and whole meat and both of those seem to give me a feeling of severe nausea. My poor wife was so frustrated that I barley was eating and forcing down a few bites and she is a great cook. Luckily it only lasted about 2-3 months for as they lowered my meds down my appetite and taste buds started
Improving.
It seemed whole type foods like say chicken breast or a salad almost any whole meat like hamburgers or sausage were hard to eat. So my goto items seemed to be any soft foods. Particularly mashed potatoes, soups, pudding , these stick out the most and scrambled eggs were OK. Stuffing jello most of those were my goto. Plus I was doing the protein shakes but I found that one certian brand was the best. Now realize I'm someone who likes almost all foods so it was the strangest experience I ever had. Now almost 5 years later I'm trying to remember exactly how long it lasted but it wasn't super long. One other thing was eat small frequent meals also. Like 6-8 a day but maybe only a few bites each.
Mornings also were my worse time and the doctors got me an anti nausea pill to take if I felt like I was going to vomit Particularly if I was taking my meds. Hope that helps and I would say keep testing different foods, consistency seemed to me to be how it was made like solid vs soft, again the strangest experience I had with my transplant which was a heart but typically the meds are similar. I think it was the Prednisone but don't hold me to that as I was on 5 other heavy meds at the same time .
Please if I can help further let me know.
Your doing great and as my wife will attest the caregiver is an Angel to us when we are going thru this so hats off to you for helping her thru this.
Blessings
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@cherismikes, You are a good mom-caregiver. Your daughter is fortunate to have you to look after her.
My taste came back right AFTER my transplant, so my situation is different than your daughter's situation. I am only speaking from my experience that I did eat after transplant, with some different food choices.
A voice mail is a good way to get message to/from nurse. What did the nurse say about your daughter's eating and the loss of taste? Are your daughter's labs showing that she is getting the needed nutrients?