New PET scan questions

I believe your doctor would like you to take aggressive chemo because there is an increase in liver mets on your PET. Meaning your current treatment or remission has ended. None of us are ever ready for this, even though we know it happens. It is a difficult thing to come to terms with.
“Multiple new diffuse hypermetabolic hepatic metastases“ loosely translates to multiple new liver mets.
Taking aggressive chemo no doubt feels like a step back, but sometimes a detour to more aggressive treatment can shrink things down to allow you to return to less aggressive treatments. I understand wanting another immunotherapy over chemo for sure. Have you discussed this with your doctor?
Has your doctor discussed this PET scan with you?

@lizzymarie, have you since met with your oncologist to discuss the results of your PET scan? What treatment plan did you decide on together?

I am in a similar situation. The metastasis to my bones responded well
To Kisqali and I was NED for 19 months then Mets came back. Switched to Affinitor but reacted badly so switched to Xeloda, PET scan last we shows cancers has progressed so moving now most likely to stronger chemo. Not thrilled but if that’s what will reduce/eliminate it then that’s what I want. Definitely more intrusive than taking oral
Chemo at home but so grateful there are options for me now that the other meds have stopped

I am sorry leeann, this is the hardest time, one that none of us can really prepare for. I know you have been at this for a while now. How is your head space right now? Did your doctor recommend a new treatment plan yet?

Thanks for your message. Yes this journey started in June 2020 and the new treatment will be the 4th one since then. Doctor is going to think on it and get
Back to me on what she thinks the best plan is. My head is all
Over the place but after an initial cry (that lasted Most of the evening) I’m
Ready to get moving on next steps. I always do better with bad news when I have a plan! Thanks again for reaching out!

How are you doing, Leeann?

Hi there, I’m doing ok thanks. Waiting to know what the next treatment will be. Doctor saw my FISH score was 2+, I was diagnosed as HER2 negative but she is considering having me go in to a clinical trial for HER2 positive since I am on the cusp of that along with radiation on my spine. I should know this week the plan,
Stressed waiting and currently not on any treatment! Will keep you posted, thanks for checking in! 😀

Hi, I had a mastectomy in 2020; no radiation was offered a pill
to try to keep it from coming back was. Because of so many side effects and the threat of more severe osteoporosis, I chose not to take the pill.
I had a pet-scan in August, and it showed more nodules growing in my lungs
I then had a biopsy.
I met with my oncologist in September, and she told me that the biopsy
said I have stage 4 metastatic breast cancer.
The first drug my doctor requested was denied; it was KISQALI; they felt
the doctor was not clear on the questions asked.
The Oncologist went to a second drug called ABEMACICLIB; the trade name is VERZENIO.
I received this drug two days ago., and I am now taking it, so far no side effects.
I meet with my cancer team bi-weekly and do blood work every two weeks to measure my white blood cell count.
I will have a pet scan in three months to see if the drugs I am on are working.
I should note that I am also on a hormone blocker called EXEMESTANE.
To all of my fellow breast cancer people, hang in there and pray for positive outcomes.