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Diagnosed with Chronic Lyme Disease: Anyone else?

Infectious Diseases | Last Active: Jul 21, 2023 | Replies (28)
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@krisjb1

I went for my annual thermogram today with the help of my husband. I wasn't able to navigate on my own. The woman doing the thermogram helped me too so I was able to complete what was needed. She told me she became interested in lymphatic drainage when she was diagnosed with Bartonella. As you may know that is one of the infections often present with Lyme. She told me she took the training after she recovered through the use of Lymphatic drainage. So, that is my next step. Hopefully it will not be too difficult to accept the effects of detox. She told me that some people cannot endure the die off and quit. If the die off is pain in my legs and feet, no problem. I have been able to work and do what has to be done with that. However, if it causes unbearable headaches or massive dizziness, I cannot. So, I may try again with the Doxy, but if I am again disabled completely by it I won't pursue it. Because the only pain reliever that has ever been useful for the head pain is nearly impossible to get as it is a class 2 narcotic I won't invite the pain by using Doxy. I have taken antibiotics before and the positive effects are short lived. The bacteria lodged in the brain cannot be reached by antibiotics as far as I know.

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Lori, Volunteer Mentor | @loribmt | Oct 7, 2022

Good morning, @krisjb1, I’m relieved you were able to get your appointment completed yesterday…and pretty amazing that your technician is experienced in lymphatic drainage after having your same diagnosis! She knows what you’re going through! I really hope it helps you as much as it did for her with her Lyme’s disease.

I can’t even imagine what you’re going through with this disease. You are the only person who can decided what you can deal with and tolerate at any given time. If treatment brings on unbearable headaches and massive dizziness it’s certainly understandable that you may not choose to continue the medications.
You mentioned that antibiotics don’t cross the blood/brain barrier. Some do have that capability and Doxycycline is one of them. Not pushing for you to continue. I just thought you might be interested why Doxy is used for Lyme’s.

Found an article on the Clinical Infectious Disease site regarding the efficacy of Doxycycline crossing the blood brain barrier in treatment of Lyme’s disease that you might find interesting. https://academic.oup.com/cid/article/30/1/237/322583?login=false

I really hope you find some relief with the lymphatic drainage and that there’s no awful detox symptoms for you. Being in capable hands of someone who has walked your walk will be comforting. She’ll be empathic and understanding of your situation.
When will you start treatment? This could be really valuable for anyone suffering from Lyme disease. Will you please let us know how you’re doing?

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