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possible Myeloma ? big shocking surprise !!
Blood Cancers & Disorders | Last Active: Nov 18, 2022 | Replies (30)Comment receiving replies
I was diagnosed with MGUS around five years ago. Have just been having lab work done every three months. I am scheduled for my third bone marrow soon. My anemia is getting really bad.doctor is probably going to put me on medication. I only have little neuropathy. I have stage three kidney disease also. Has been stable for a long time. I am tired all the time. Will be 83 in December.
Replies to "I was diagnosed with MGUS around five years ago. Have just been having lab work done..."
Donyork, I was told by an oncologist/hematologist about 7 years ago that I "could not have bone marrow or any other such cancers because they are just too rare". Today we discovered a series of new bone lesions on my skull, inner mouth and pelvis. Say a word of thanks to your supporters, oncologists, etc for their words to keep you going. My largest spot is just above my left eye on the hairline, about the size of a 50-cent piece. And another two groups of 6 and 8 smaller spots, and about 200 Torres del Muir over the rest of my head and shoulders, down to my crotch. I will be 83 in April, tired all the time, mouth full of tooth and gum pain with 6 T-M in lower mouth, and a splitting area of my upper mouth. COVT, LGMDr23, colorectal dx, Chronic leukemias and anemias, Ankylosing spondylitis, etc. My PCP is not ambitious enough to help me. oldkarl
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@donyork Welcome to Mayo Clinic Connect. It's nice to hear you have been having lab work every three months and it has worked for your monitoring of MGUS. You are in the majority, so many go for years with no progression of disease.
One of the things that was important to me was the need to be careful with my diet. While many doctors don't seem to ascribe to following good diet habits with kidney disease, limiting processed foods, eating fruits and vegetables that have low potassium/phosphorous/calcium, eating quality protein, keeping well-hydrated play roles. Not only do you feel better, but you help your kidneys out, too.
Like you, I am a chronic kidney patient, now on dialysis. But being aware of your own health, and doing all you can for yourself, gives you a step ahead, and makes you feel good physically and mentally! Been there, done that.
Here is a link to a discussion on recipes you can peruse: https://connect.mayoclinic.org/discussion/my-ckd3-meals/
And if you need more information about Stage 3 kidney disease, there are several useful discussion in the kidney and bladder group: https://connect.mayoclinic.org/group/kidney-conditions/
Any questions, please ask away!
Ginger