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Atypical lobular hyperplasia: Did you have surgery?
Breast Cancer | Last Active: Dec 17, 2023 | Replies (79)Comment receiving replies
hi @wendles. I was diagnosed with ALH last year, after I had a lumpectomy. originally my lump was biopsied and thought to be a phyllodes tumor but after lumpectomy, it was found to be a fibroadenoma. the ALH just happened to be in the border of tissue that they removed with the lump. I was offered tamoxifen but, and I kind of feel selfish about this, I was 37 at the time and didn't like the idea of going through menopause that early. So I asked about mastectomy, specifically a prophylactic mastectomy with reconstruction if possible. the oncologist and general surgeon told me that it was an option. 6 months after my lumpectomy I had a bilateral prophylactic mastectomy with reconstruction. I will be post op 1 year in November 2022.
I was not offered radiation therapy for the ALH. Not sure if that is something that is normally offered.
I am also new here and was just looking to view other experiences. I'm a mom of 3 and a family medicine doctor.
Replies to "hi @wendles. I was diagnosed with ALH last year, after I had a lumpectomy. originally my..."
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hope you have healed welI, that is a lot for you with little ones running around.. I had a lumpectomy that they found the ALH. I had considered another (I had one at 29 thirty years ago) mastectomy but was talked out of it by my husband because of heart issues I am going through too and worry about how much it would take out of me. It took three months to get cardiology approval for the lumpectomy. The dr gave me option but wasn't pushing it. My radiologist I saw Monday said the radiation will kill any ALH so that was good news. My first treatment is 18th.