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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@kcalby

The vision loss combined with other stuff you mentioned is consistent with MS. I always thought it was inherited but it's not so I never looked at it but it's actually stimulated most often by viral infections. Some blood tests I'm requesting are to better monitor my b12 and vit d because decreased levels can be indicative, EBV antibodies to see if theres been a previous exposure of the virus correlated the most with MS and or to see if it's still in the system, Human Herpes 6 antibodies, and the gene HLA DRB1 *1501

Dunno if this helps at all but I think we all know no one else is gonna figure it out for us.

A MS diagnosis could help them better handle the acute issues as they come up.

Post interferon syndrome isn't a diagnosis on its own because there's no roadmap for it. It really just means you suffered viral and chemical exposure that opened the door to encephalitis which depending on if u had this other virus dormant in ya can be stimulated into relapse which would cause the same symptoms experienced thru all the other exposures.

I don't know how much sense I'm making.

Much love to you and I pray u find relief and real SUPPORT

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Replies to "The vision loss combined with other stuff you mentioned is consistent with MS. I always thought..."

Hello-
Awww but there is a roadmap and my friend whom is working on class action with me figured it out! And we have the proof lol n its a relief to know too!!