So, Here we are about a year and a half since I first posted this…. Just a quick recap, but since starting this discussion things have gone downhill with nerves and CNS. Worst is the short term memory which is frustrating my wife to no end. I have developed a pattern of forgetting stuff half way through. Worst is forgetting that I started cooking something and forgetting the oven is on (timers help, but they haven’t prevented me from making some major mistakes). Another favorite is “oh, while you are up can you get X, Y, and Z?” And I come back with maybe x, or z, but rarely remember all three or more unless I write them all down. More pins and needles and lack of coordination (dropping stuff) but the memory failures are more disruptive than even the pain. The only suggestion from rheumatology is to go back to the monoclonal antibodies, but when I tried that I ended up with a prostate infection that required surgery and a two week hospital stay, so i am very reluctant to go that route again. If this keeps going south I may end up moving to Charter house sooner than I had hoped!

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