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Low Platelets with Myelodysplastic Syndrome (MDS)

Blood Cancers & Disorders | Last Active: Jan 24, 2023 | Replies (39)
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@shels93

My husband was just diagnosed with MDS, and probably needless to say we are at a loss. I've been doing research and am glad I found this thread. I forced him to go to the ER 2 weeks ago bc he appeared to be getting more winded just climbing up and down the stairs. That's when they did the CBC and found that he has pancytopenia. He has a second opinion evaluation next week, and had another CBC panel done yesterday. His platelet count dropped from 35 to 30, but the hematologist is not concerned and said he doesn't need anything prior to the visit next week. Should I be concerned? I left a message for the doctor but haven't heard back yet. Thoughts?

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Replies to "My husband was just diagnosed with MDS, and probably needless to say we are at a..."
Lori, Volunteer Mentor | @loribmt | Oct 7, 2022

Hi @shels93. I’m so sorry I missed your post earlier. It’s really frightening when you get news such as your husband’s. It clips you right off at the knees. The good news is that his doctor is on top of this now and he’ll be getting the help he needs.
His blood at 30 is in reality 30,000. It is low but it is still not dangerous and he should ok until his next appointment in a week. Just use caution when handling knives…my hematologist would tell me to stop practicing my knife juggling act for a couple weeks…I appreciated his sense of humor. 🙂
Welcome to Mayo Connect. As you found, there are a number of members in the same boat as your husband. We all gather together around our ‘kitchen table’ to help each other out. Will you let me know how his appointment goes?

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