← Return to Low Platelets with Myelodysplastic Syndrome (MDS)
DiscussionLow Platelets with Myelodysplastic Syndrome (MDS)
Blood Cancers & Disorders | Last Active: Jan 24, 2023 | Replies (39)Comment receiving replies
Replies to "I thought I would share my experience which I am grateful that my only symptoms at..."
I was diagnosed with low platelets and MDS in 2012 and my local transplant oncologist advised me to do an unrelated donor stem cell transplant immediately. Instead, I travelled for a second opinion and decided to wait and watch. MDS turned into AML and I did the transplant, placing me in remission for the last decade for both AML and myeloma, which I’ve had since 1992. I posted 4 minute YouTube videos of our lessons learned. Search 30 year myeloma survivor patient 007. Below links to the latest episodes; click videos at top to see all episodes
https://youtube.com/channel/UCqLcRQUKliWxNh_4avhBysg