← Return to Low Platelets with Myelodysplastic Syndrome (MDS)

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@hlmcneely

I thought I would share my experience which I am grateful that my only symptoms at this time is the fatigue and the bruising. When my platelets reached 64 they had me do the bone marrow biopsy. I got the results and there were two mutations. SRSF2 gene and TET2 gene mutations. I was able to research those out to tell me my diagnosis before I went to the second oncologist specialist. His diagnosis was MDS and we are doing blood work every 2 months. Several things I could be looking at down the road, chemo is one, but for now it is watch and see. My platelets currently run from 70 - 80 with the red and white both run low. I have good days (engery) and bad days. Today I am tired but tomorrow I may feel find. Prayers for you and your health.

hollie

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I was diagnosed with low platelets and MDS in 2012 and my local transplant oncologist advised me to do an unrelated donor stem cell transplant immediately. Instead, I travelled for a second opinion and decided to wait and watch. MDS turned into AML and I did the transplant, placing me in remission for the last decade for both AML and myeloma, which I’ve had since 1992. I posted 4 minute YouTube videos of our lessons learned. Search 30 year myeloma survivor patient 007. Below links to the latest episodes; click videos at top to see all episodes
https://youtube.com/channel/UCqLcRQUKliWxNh_4avhBysg