Learned the hard way. Use Word to type a response then copy & paste. Website has malfunctioned a couple of times where it loads forever then errors out.

Wishing you the best. It helps reading about other peoples' journeys. It also gives me an opportunity in this day and age beyond what feels like electronic means to have a real conversation that doesn’t involve tweets or the like in length.

If you could find loophole in Medicaid's handbook, then suing for administrative argument, you may get off cheaply and may get the help you need. Maybe, even have them pay for it, like the story below. Some medical equipment companies accept payment plans. Not sure about medical equipment grants either.

Is there a way to file a reasonable accommodation with Medicaid, and in an extraordinary circumstance such as what I read in your posts, get what you want/need? Google is your friend when looking at keyword searches. Medicaid is a Federal program and they view transparency as important. I can't post websites: "Medicaid Handbook 2022", choose The State Medicaid manual – CMS. By the way, those free attorney consultations that you see on websites or the Yellow Pages can give you access to free information. Educate yourself and fight it if you have to. Use CTRL and F to keyword search within the PDF document or website.

I fought Wyoming Worker's Compensation for years and made them pay for everything. They didn't get out easy. Mayo Clinic alone was $26k out of pocket. Found a loophole when they deny a claim (within your working claim / i.e. many specialist doctors -expensive), you can sue them and they will pay for it. My parents read the handbook and played the game. We won with the exception of not understanding the full settlement terms even with the NY Hospital for Special Surgery saying disability of 25%. They paid a mere 8% disability. Shame on them, stupid me. My point is, educate yourself.

Mental Toughness:

These days I hear from quite a few people that say I am being too hard on myself. I feel I have to stay disciplined in my mind because if I relax it may go away, but generally, short-falls hurt and I do all I can to make things right. That changes a person. Do it enough and the power of brain neuroplasticity begins. Like the saying goes, use it or lose. The same works in reverse and in physical therapy is where I saw this phenomena. I typically listen to YouTube, best motivation or self-motivation, when I feel all depressed, down on myself, abilities, lack of knowledge, low self-esteem, severe flare-up pain which causes a different set of emotions counteracting and causing problems amongst themselves. Yay.

Although not likely true because CRPS does cause mental issues over the long term. My opinion is because the body is in constant flight or fight mode and consciously knowing this reality is a fight between systems. I think to some degree we tend to beat ourselves up when life isn't perfect, doesn't feel perfect, and television, magazines, social media tells us what to think. I believe in a clinical setting and a professional environment you will not be judged. I have a quote I keep close by as a reminder for how far I've come and that life is always changing.

You may not be where you're supposed to be. You may not be what you want to be. You don't have to be what you used to be. And, you don't have to ever arrive. You just need to learn to be the best you can be right now. -Unknown.

Wishing you the absolute best and hope you do make the journey to the Mayo Clinic. The three weeks I was there was a very good experience.