Anyone else gone gluten and dairy free to help improve symptoms

Posted by eileenb1022 @eileenb1022, Sep 30, 2022

Hi,
It has been suggested to me and i have talked to people who havegone gluten and dairy free that has helped their symptoms. justlooking for anyone here who has and interested if it has made a difference? if it has could you share some menu's or give me some ideas? and how long did it take for you to see improvement? i have some general ideas on what to buy but looking for more before i head out. its been suggested to me because i have hypothyroidism which until recently has been out of whack, hyperplasia with possibilityof autoimmune gastritis, possible sjorgens syndrome and maybe lichen sclorus. im waiting on specialists to confirm but i have to wait for appointments which is so hard. its kind of like starting fresh. in 15 months of being sick i have gotten little help so im traveling 3 hours to boston where i can get better help its just hard waiting for these appointments.i am seeing a naturpath dr in a few weeks never been to one so not sure what to expect but i think he is better than who previously i have seen. sorry to ramble just hoping someone here relates tome and can help me out. thank you!

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@nitsirk

Im currently doing a nutritional thing with Zoe Health (I have no relationship to them, but have 3 welcome codes if anyone is seriously interested) This one is different to just cutting out the various sugars in milk and wheat. Although there is a good set of information on cutting out all the bad sugars, known as low FODMAP on the NHS website, including dietary videos and an app to barcode foods to check whats in them. The Zoe one is the next step, where I am having blood, stool, and continuous glucose monitoring alongside food logging. They then test my reactions to sugars and fats, and dna profile the gut microbiome. Its a few hundred quid, so had to think carefully, but am really excited to get my results back, and then I have 4 months of refining my diet to reduce dietary inflammation with their nutritionists, usually via chat on the app. Its very new, and I got early access thanks to being a regular logger of my covid health throughout the pandemic. I did indeed find fodmap helpful, but then I had developed IBS during peri menopause as is so common. It is quite restrictive, but you soon find what sort of balance you can literally stomach. Its been a slow and steady journey, but has been good in expanding my food intake. I now try to stick to homemade yoghurt bread made with spelt - which is dead easy to make, and wonderful still warm. I also know which fruits and veg to be wary of. It has made me very interested in Japanese cuisine, which has very little in the way of dairy, thanks to higher level of lactose intolerance in asian genetics. I definitely recommend the NHS IBS pages for a start, as its free of course! Also try increasing your probiotics and variety of plants in your diet (includes seeds, beans, nuts, funghi….) so basically try simple things like swapping a mixed fruit and nut cereal for one of just wheat or corn and then its easy to up the variety. 😉

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thank you for the suggestions. ijust went gluten and dairy free shopping yesterday and i'm all stocked up on that so i'm gonna stick with that and see if it helps. i also see a naturpath dr next week so im interested in what he has to say.

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I have had chronic, life altering diarrhea all my adult life. I tried all sorts of things but never tried cutting out gluten because A) I always heard that it was a crock unless you have celiac disease and, B) I thought it would be too hard to do. I cut way back on carbs a few years ago when my husband was diagnoses with Type II Diabetes and my digestive track improved greatly. So I thought my problems were related to eating sugars/carbs (I didn't think about how I was also greatly reducing gluten at that time, duh!) But when I got my cancer diagnosis had lost 20 lbs and they wanted me to gain weight. So I threw out my low carb diet and ate carbs with abandon for a few days and felt awful! All the old out of control diarrhea problems and gut pain came roaring back. I then realized that eating more carbs meant I had also gone on a gluten bender. I cut out all gluten and within a week or two I had a truely normal digestive system for the 1st time in over 40 years! I also have RA which has been in remission since around the same time that I lowered my carb intake. Don't know for sure that it's related, but I don't want to find out. I have a cancer dietician who insists that "gluten free" is just a fad. She claims there is no real test for it. On the other hand I have friends who are gluten free who insist they have been tested. One of my friends' Drs believes that NOBODY should eat gluten. It turns out that cutting out gluten isn't as hard as you might think. Gluten free or gluten friendly stuff is pretty easy to find. I don't know if this is the proper place to name brands/stores etc...But I have found a ton of good alternatives. My gluten free friends were the best resource. I'd say give cutting out gluten a try for a couple of weeks. The difference was so dramatic for me that I don't feel I need a test. Good Luck! I hope you get an answer.

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@eileenb1022

its interested you mention moderna vaccine. all my problems started 2 1/2 months after my 2nd moderna vaccine. a ct scan showed inflammation in my stomach. before i had few health problems now i have more specials ts crazy and i tire easily. i also get b12 injection and my ferritan and iron is low but i take supplements also to help.i see a naturpath dr next week. i also have a type of hyperplsia with possibility of autoimmune gastritis. been waiting untilnov to see new astro but ihave been trying hard in he meantime to help myself. i think going gluten and dairy free will help.

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I belong to another group, "Stuff that works" focussed on people struggling with the Epstein Brr virus. 3 responses noted that their old symptoms reappeated after the Covid vaccine, and several claimed that Covid and long Covd caused the resurgence of EPV, If the immune system is suppressed by some kind of attack, whch for many of us happened with the Moderna vaccine, the result was illness, likely autoimmune. Several Mayo connect members fit into this vaccine injured group, and many of us are now suffering with new or mre severe autoantibodies, which cause inflammation. I am becoming more expert on dealing with this, but I haven't found a way to overcome the incredble fatigue I experience. I have improved, because now I can hold my head up for hours. A few months ago, it was minutes. A member of my "stuff" group descrbed a stimlent Rx drug she took that helped. My problem is being bedriden which makes it difficult to get out and find a doc who understands autoimmunity and fatigue. I had to leave my beautiful home in Oregon because of my illnesses from the vax injury, so I am starting with all new docs. As soon as I have found a primary doc, I will ask for modafinil, which is a mild stimulent. In your situation, I believe that changing your diet to organic whole foods, no gluten or dairy. plus removing foods causing your sensitivities will hwlp your sromach. So many members of my Facebook Autoimmune group have food sensitivities snd stomach issues as you an I do. All the best in dealing effectively with your inflammation and healing.

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@gillysmom

I belong to another group, "Stuff that works" focussed on people struggling with the Epstein Brr virus. 3 responses noted that their old symptoms reappeated after the Covid vaccine, and several claimed that Covid and long Covd caused the resurgence of EPV, If the immune system is suppressed by some kind of attack, whch for many of us happened with the Moderna vaccine, the result was illness, likely autoimmune. Several Mayo connect members fit into this vaccine injured group, and many of us are now suffering with new or mre severe autoantibodies, which cause inflammation. I am becoming more expert on dealing with this, but I haven't found a way to overcome the incredble fatigue I experience. I have improved, because now I can hold my head up for hours. A few months ago, it was minutes. A member of my "stuff" group descrbed a stimlent Rx drug she took that helped. My problem is being bedriden which makes it difficult to get out and find a doc who understands autoimmunity and fatigue. I had to leave my beautiful home in Oregon because of my illnesses from the vax injury, so I am starting with all new docs. As soon as I have found a primary doc, I will ask for modafinil, which is a mild stimulent. In your situation, I believe that changing your diet to organic whole foods, no gluten or dairy. plus removing foods causing your sensitivities will hwlp your sromach. So many members of my Facebook Autoimmune group have food sensitivities snd stomach issues as you an I do. All the best in dealing effectively with your inflammation and healing.

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Thank you. I'm hoping no gluten and dairy will help. I belong to stuff that works too. Do you know if there is a group for people who had a adverse reaction to the Moderna vaccine?

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Right there with you….. plus I have gastroparesis & my Hubby is diabetic…. I found a lot of recipes on Facebook & Pinterest….. it’s helped a lot! I’m so limited to being lactose intolerant per Mayo Clinic not being able to eat much on my gastroparesis diet also….Prayers For Solutions!!!!

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@eileenb1022

Thank you. I'm hoping no gluten and dairy will help. I belong to stuff that works too. Do you know if there is a group for people who had a adverse reaction to the Moderna vaccine?

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A Facebook group of Covid vaccine injured people is called Neuro V Long-Haulers for all COVID 19 vaccine injured, an international group. I visited, but there was no access to join, If you get in, please try to help me get in, and I wil do the same for you. The info was given to me by a Mayo connect member who was vax injured and who had a protocol of supplements given to her by her paid functional doc. I can share this with you.

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@eileenb1022

Thank you. I'm hoping no gluten and dairy will help. I belong to stuff that works too. Do you know if there is a group for people who had a adverse reaction to the Moderna vaccine?

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Yes, there is. A Mayo connect member, one of the vaccine inured who gave me a gave me the name of a Facebook group, Neuro V Long-Haulers, people who were vx injured. I visited the group, but couldnt find a membership access. I WOULD LIKE TO BE A MEMBER because it is filled with people like us. It's international and huge. If you find a way in, please invite me, and vsa-versa. Not just the Moderna, but any Covid vaccine injury should gain access.

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@gillysmom

Yes, there is. A Mayo connect member, one of the vaccine inured who gave me a gave me the name of a Facebook group, Neuro V Long-Haulers, people who were vx injured. I visited the group, but couldnt find a membership access. I WOULD LIKE TO BE A MEMBER because it is filled with people like us. It's international and huge. If you find a way in, please invite me, and vsa-versa. Not just the Moderna, but any Covid vaccine injury should gain access.

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eileenb1022, I just finished joining the Neuro V Long-Haulers and a support group fo covid vax injured, 6+ months: Neuro V -6+ Long-Haulers. Access was not a problem this time. Are you a Fb member? If so, let's become friends. aaaaaayou will need Fb membership to join. Hope we both benefit. Mayo member who gave me the info said she was helped.

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@gillysmom

A Facebook group of Covid vaccine injured people is called Neuro V Long-Haulers for all COVID 19 vaccine injured, an international group. I visited, but there was no access to join, If you get in, please try to help me get in, and I wil do the same for you. The info was given to me by a Mayo connect member who was vax injured and who had a protocol of supplements given to her by her paid functional doc. I can share this with you.

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OK if you can share that would be great. I will try to get into that group if I can I will let you know. I will let you know either way. I see a naturopath dr next week. Really excited. Never saw one before.

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@gillysmom

eileenb1022, I just finished joining the Neuro V Long-Haulers and a support group fo covid vax injured, 6+ months: Neuro V -6+ Long-Haulers. Access was not a problem this time. Are you a Fb member? If so, let's become friends. aaaaaayou will need Fb membership to join. Hope we both benefit. Mayo member who gave me the info said she was helped.

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I just applied my status right now is pending hope I get in cause all my problems since has been awful. I am on Facebook I don't know if I'm allowed to put my full Facebook name here though

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